Neuroendocrine Tumors (NETs) Support Group

I have had CLL since 1996 and during the years had oral chemo 3 times to regulate white blood count, but for about 8 years...

Hello, I’m 90 days post-diagnosis with a G1 (non-functional) pancreatic malignant neuroendocrine tumor (PNET) on my pancreas, measuring 1.3 cm (CT scan on 4/23 showed...

I was told yesterday that my NET has spread to my spine L1 and my periportal lymph node I did Lanreotide and Ocreotide injections for...

Started Everolimus for pancreatic Neuroendocrine cancer with Mets to liver and bone diagnosed four years ago. Was 49 when diagnosed. Had TACEx4, IV radiation(PRRT) x4,...

Any one have 2 surgeries because doing it all at once would be too Much? Surgery 1: remove pancreatic tail tumor. My spleen was saved....

I was diagnosed with a small bowel obstruction (SBO) in 2022 that turned out to be Stage 2 NETS. Had surgery & did fine until...

Hello, recently diagnosed with Pancreatic NETS. Unsure of type other FNA which listed grade 1 and KI67 @ .97%. Scheduled for body and Distal surgery...

My wife and I visited with one of my doctors on my Mayo care team yesterday. We reviewed my recent tests. The CAPTEM chemo is...

What is my life expectancy as a result of my NET? Diagnosed 3 years ago with Grade 1, Stage 4 NETs. Primary tumor is probably...

Hi there, I was recently diagnosed with a Neuroendocrine tumor in my rectum. After a rectal biopsy and correlating morphology and Immunohistochemistry, the diagnosis was...