Neuroendocrine Tumors (NETs) Support Group

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Comment

The oncologist feels that the Zometa will strengthen the areas in my spine and pelvis. One...

https://connect.mayoclinic.org/comment/1143611/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18, 2024

Comment

@panorman3 Your doctor will likely keep an eye on the blood sugars through regular bloodwork. That...

https://connect.mayoclinic.org/comment/1439930/

Discussion: What is the best treatment for carcinoid tumor in mesentery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 16, 2025

Comment

@colleenyoung thanks for asking. The one larger tumor is to be ablated and continued Lanreotide treatments...

https://connect.mayoclinic.org/comment/1527674/

Discussion: New spots showing up

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 15 3:59pm

Comment

Not at this time only get lanreotide. Next scan in September Dr said I will go...

https://connect.mayoclinic.org/comment/1336777/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 28, 2025

Comment

Going for my 3rd injection of 120 mg Lanreotide next week. No facial or lip sores....

https://connect.mayoclinic.org/comment/1119417/

Discussion: Facial and lip sores from lanreotide injections for NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 7, 2024

Comment

Diagnosed with NELM 2017 with unknown primary, well differentiated grade 2 in liver and abdominal area....

https://connect.mayoclinic.org/comment/998435/

Discussion: Statistics on progression free survival while on SSA / Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16, 2024

Comment

PNEt. Had capTem, lanreotide, everolimus, prrt, CapeOx and now Keytruda. Been going strong for 6.5 yrs...

https://connect.mayoclinic.org/comment/1307403/

Discussion: Keytruda for neuroendocrine cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19, 2025

Comment

As I said there have no treatments for the past 5 months. I did have Lanreotide...

https://connect.mayoclinic.org/comment/1209962/

Discussion: I am one year out with my diagnosis just finished 4th round of PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 12, 2025

Comment

Welcome. Have you posted before? That's a lot to unpack. You have a rare type of...

https://connect.mayoclinic.org/comment/1406878/

Discussion: Several inoperable paragangliomas, on lanreotide, now big mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 2, 2025

Comment

My 88 year old loved one has had a gallbladder full of stones before starting lanreotide...

https://connect.mayoclinic.org/comment/1317638/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 1, 2025

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