Neuroendocrine Tumors (NETs) Support Group

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Comment

Thank you, yes that is me and my passion that the pain keeps me from. I...

https://connect.mayoclinic.org/comment/733482/

Discussion: Pituitary and pNET: Can't do the things I love anymore

Support Group: Brain Tumor

Posted: Aug 2, 2022

Comment

This site was given to me at Mayo's in Mn.. I am sooo glad to be...

https://connect.mayoclinic.org/comment/134546/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 21, 2019

Comment

I totally sympathize with your situation. Its frustrating to not have the answers you need. But...

https://connect.mayoclinic.org/comment/1337015/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 28 10:59am

Comment

I had a Whipple at Mayo Rochester in October 2024 as well and my scan last...

https://connect.mayoclinic.org/comment/1260581/

Discussion: Pancreatic Cancer: Anyone have liver metastasis after Whipple?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17 6:00pm

Comment

Yes I have read the Pet scan myself. No exact measurements. Existing hepatic lesions have shown...

https://connect.mayoclinic.org/comment/1333735/

Discussion: Stage 4 grade2 Pancreatic Neuroendocrine ki67 20% Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23 6:31pm

Comment

Hello @matt2024 ! I too have pNET but with liver metastases. Had distal pancreatectomy ( with...

https://connect.mayoclinic.org/comment/1082347/

Discussion: Grade 1 Non-functioning (NF) NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 7, 2024

Comment

@margaret12 Depending on the type of imaging (MRI, CT), my liver lesions have been described as...

https://connect.mayoclinic.org/comment/830370/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22, 2023

Comment

Thanks or reaching out to me. I am being seen by a medical oncologist at University...

https://connect.mayoclinic.org/comment/827264/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 16, 2023

Comment

I never heard of that test I have to google that , what I can tell...

https://connect.mayoclinic.org/comment/768133/

Discussion: Newly diagnosed - neuroendocrine tumor in intestines

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 1, 2022

Comment

My NET’s were discovered by my gastroenterologist during reviewing a CT scan after I had a...

https://connect.mayoclinic.org/comment/1177879/

Discussion: How many doctors did you see to get to your NETS diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 22, 2024

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