Neuroendocrine Tumors (NETs) Support Group

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Comment

Without the expertise of the physicians at Mayo, I believe my difficult situation would have finished...

https://connect.mayoclinic.org/comment/42804/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 13, 2019

Comment

Hello @kate12345 and welcome to Mayo Clinic Connect. While I'm sorry to hear of your diagnosis...

https://connect.mayoclinic.org/comment/664975/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 24, 2021

Comment

There is a study from the Carcinoid Cancer Foundation, through the University of California, which might...

https://connect.mayoclinic.org/comment/652375/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 8, 2021

Comment

My dad passed in 2008. He had pancreatic cancer as well, along with other miscellaneous ailments....

https://connect.mayoclinic.org/comment/644706/

Discussion: I've had 3 cancers: Thyroid cancer, Lung Cancer and Breast Cancer

Support Group: Cancer

Posted: Oct 14, 2021

Comment

Hi tatteesmom3, are you seeing a NETS (neuroendocrine tumor) multidisiciplinary team or just a local oncologist...

https://connect.mayoclinic.org/comment/844936/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 18, 2023

Comment

Oh it is so frustrating, isn't it? Someone told me that I should feel very comfortable...

https://connect.mayoclinic.org/comment/854520/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2023

Comment

Hi vtn There are a lot of people that have had no additional growth or metastatic...

https://connect.mayoclinic.org/comment/859181/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13, 2023

Comment

Not experiencing any sores. Try to manage worrying. I read where many patients live for many...

https://connect.mayoclinic.org/comment/869518/

Discussion: Life expectancy with NETs and lifetyle as it progresses

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 30, 2023

Comment

--Apple-Mail-F0CDBC28-0670-471D-96AB-14032B8A8DD1 Content-Type: text/html; charset=utf-8 Content-Transfer-Encoding: quoted-printable Hopeful. I=E2=80=99m not a real shari= ng kind of person....

https://connect.mayoclinic.org/comment/871054/

Discussion: Paraganglioma / Carotid Body Tumor Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 2, 2023

Comment

It technically is two chemo pills; capecitabine and temozolomide. You will take more than two of...

https://connect.mayoclinic.org/comment/881550/

Discussion: My Sister and Best Friend

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2023

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