Neuroendocrine Tumors (NETs) Support Group

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Comment

Hello My wife has had a good, sustained response to captem for her grade 2 stage...

https://connect.mayoclinic.org/comment/1358197/

Discussion: Unsure , questions on what to do

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 28, 2025

Comment

@rockchick, welcome. I know you're scared. I hope you saw the helpful posts from members like...

https://connect.mayoclinic.org/comment/797177/

Discussion: Scared - Suspected NET on tail of the pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 15, 2023

Comment

Yes, Pnet neuroendocrine ki 67 > 2 malignant non functioning was the diagnosis after biopsy in...

https://connect.mayoclinic.org/comment/879759/

Discussion: Should I see a NET specialist?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16, 2023

Comment

Dear spinhead, I hope that you are doing well. I learned a lot from your post....

https://connect.mayoclinic.org/comment/1392691/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 13, 2025

Comment

I have 1 PNET, diagnosed last Dec. Still educating myself. This is a good sight for...

https://connect.mayoclinic.org/comment/1034540/

Discussion: Anyone have experience with "functioning" Pancreatic NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 16, 2024

Comment

Thank you, always like positive feedback. It is great you are doing well. The oncologist said...

https://connect.mayoclinic.org/comment/1220030/

Discussion: PNETs: What comes first? Surgery or try to shrink tumor with chemo?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 23, 2025

Comment

I am aware. My husband died from pancreatic cancer (adenocarcinoma) the aggressive pdac . Our son...

https://connect.mayoclinic.org/comment/1381475/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 28, 2025

Comment

Thanks so much! I may see if my Ontario doctor will refer me to BC Cancer....

https://connect.mayoclinic.org/comment/925329/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 6, 2023

Comment

Just take a deep breath. It can be a long process. I have a metastatic Pnet...

https://connect.mayoclinic.org/comment/1290592/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 26, 2025

Comment

My husband has a no functional pnet with negative blood work so I’m not as familiar...

https://connect.mayoclinic.org/comment/1048909/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 11, 2024

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