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Discussions (73)
Comments (721)
Comment
Yes. I was diagnosed with tumours on my lung 7 years ago. They were watching them...
https://connect.mayoclinic.org/comment/899066/
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Discussion:
Newly diagnosed High-Grade Neuroendocrine Lung Carcinoma
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 20, 2023
Comment
For anyone in the S. CA area, I had my DOTATATE PET Scan at UCLA in...
https://connect.mayoclinic.org/comment/835350/
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Discussion:
Octreoscan/Ga-68 DOTATATE PET/CT -- Where to go?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 31, 2023
Comment
I take octreotide injections for lung NETs and DIPNECH to control respiratory symptoms (works great) and...
https://connect.mayoclinic.org/comment/1346205/
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Discussion:
Any one with Neuroendocrine tumors getting the shot once a month?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 11 11:01pm
Comment
I am new to this forum. Have 2 carcinoid tumors in left lung that are inoperable....
https://connect.mayoclinic.org/comment/831583/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 25, 2023
Comment
I had left lower lobe removed had bad coughing to point of fracturing a lung cough...
https://connect.mayoclinic.org/comment/1066999/
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Discussion:
Describe your recovery from lung NET surgery
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 13, 2024
Comment
Neutoendocrine dyptic tumor on the outside of your lung? I have not heard.of that type. My...
https://connect.mayoclinic.org/comment/1065154/
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Discussion:
Anyone living long-term with DIPNECH on lungs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 10, 2024
Comment
I am still relatively new to this whole journey. I am curious what “type” of cancer...
https://connect.mayoclinic.org/comment/816816/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 24, 2023
Comment
@gig666 How did your PET scan turn out? Was it a DOTATATE scan specifically for NETs?...
https://connect.mayoclinic.org/comment/1033637/
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Discussion:
High risk surgery. Is it worth it?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 14, 2024
Comment
dpepsi247 | @dpepsi247 | 1 minute ago I am still relatively new to this whole journey....
https://connect.mayoclinic.org/comment/816818/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 24, 2023
Comment
Welcome Shella- News that is life-changing is certainly an incredible kick to the head! Especially if...
https://connect.mayoclinic.org/comment/812961/
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Discussion:
What tumor size is typical for removing part of the lung?
Support Group:
Lung Cancer
Posted: Feb 17, 2023
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