Neuroendocrine Tumors (NETs) Support Group

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Comment

I have been taking Lanreotide for two years. My hair started falling out and I had...

https://connect.mayoclinic.org/comment/874989/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 8, 2023

Comment

What is the Y 90 treatment? I also have had good results with the Lanreotide plus...

https://connect.mayoclinic.org/comment/1055380/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2024

Comment

Hello! I have been on lanreotide injections since March 2023. The first day I go on...

https://connect.mayoclinic.org/comment/909146/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 7, 2023

Comment

I was diagnosed with Metastatic P-NET VIPoma in 2019. I had surgery to remove a part...

https://connect.mayoclinic.org/comment/791950/

Discussion: NET-VIPoma pancreatic tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 3, 2023

Comment

I have just been diagnosed with Neuroendocrine cancer, and currently have no symptoms. It is metastatic,...

https://connect.mayoclinic.org/comment/825770/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 13, 2023

Comment

The oncologist feels that the Zometa will strengthen the areas in my spine and pelvis. One...

https://connect.mayoclinic.org/comment/1143611/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18, 2024

Comment

@panorman3 Your doctor will likely keep an eye on the blood sugars through regular bloodwork. That...

https://connect.mayoclinic.org/comment/1439930/

Discussion: What is the best treatment for carcinoid tumor in mesentery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 16, 2025

Comment

Going for my 3rd injection of 120 mg Lanreotide next week. No facial or lip sores....

https://connect.mayoclinic.org/comment/1119417/

Discussion: Facial and lip sores from lanreotide injections for NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 7, 2024

Comment

Not at this time only get lanreotide. Next scan in September Dr said I will go...

https://connect.mayoclinic.org/comment/1336777/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 28, 2025

Comment

PNEt. Had capTem, lanreotide, everolimus, prrt, CapeOx and now Keytruda. Been going strong for 6.5 yrs...

https://connect.mayoclinic.org/comment/1307403/

Discussion: Keytruda for neuroendocrine cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19, 2025

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