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Public Support Group 2,505 total results
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My journey since diagnosis of pets, metastasis to liver, Jan.2025 has been monthly Lanreotide, now every...
https://connect.mayoclinic.org/comment/1329038/
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@tgsenn70 I would share the swelling with your care team especially the abdomen. When I first...
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Tumor growth in three month follow up MRI
Interested in others experience to understand imaging. Radiologist reports "Hepatic metastases have mildly increased in size from prior CT Dec 2024 and MRI November 2024."...
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Anyone have anything to share on Neuroendoscopic SCLC? In hospice
Up until recently I have been posting under Blood disorders, because I was overloaded with IV iron infusions by a careless doctor who gave me...
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Immunotherapy (Ipilimumab & Nivolumab) for NETs: Any experiences?
Diagnosed with high grade(3) neuroendocrine carcinoma. Irgun duodenum. Mets pancreas and many in liver. Did 4 cycles of carboplatin and etopiside chemo in hope to...
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NET and neuropathy
20 months after NET found in small intestine and already spread to liver. I have had resection, monthly octreotide injections, and Lutathera. The cancer seemed...
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PNET in Tail of Pancreas, Portal and Splenic Veins
PNET Grade 2 (K-67 3.2%) in tail of pancreas, both portal and splenic veins. No mets to liver or spleen. Just finished 3rd round of...
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Anyone have pancreatic neuroendocrine tumors with carcinoid syndrome?
I'm 87 years old and was recently diagnosed with a well-differentiated grade 1 pancreatic neuro-endocrine tumor, with widespread hypermetabolic disease. My PET scan showed extensive...
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Lanreotide side effects: Anyone having GI issues?
4 yrs ago routine prostate MRI showed nets in my Ilium of small intestine, surgery 2022 to remove 2 feet of small intestine and about...
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Neuroendocrine Pancreatic Tumors with KIT Missense Variant Exon 10 GOF
Diagnosed in August 2025. Started Lanreotide injections in October. Pet Scan revealed a "Christmas tree". Tumors covering pancreas and liver. Non-functional and no further symptoms....
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Anyone else get bloating and abdominal pain from NETS or Lanreotide?
I have primary NET in the small intestine, spread to stomach wall and liver. I just got my 3rd monthly Somatuline (Lanreotide) injection 4/12. About...
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Adenocarcinoma with Neuroendocrine
I have recently been diagnosed with the Differentiated Adenocarcinoma with Neuroendocrine Differentiations in the Gallbladder, Liver, and parts of right and left Abdomen. I have...
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