Neuroendocrine Tumors (NETs) Support Group

Hey all, I’m struggling with pain and could use some support.I had a LEEP surgery 5 months ago which began a daily battle with severe...

My husband was diagnosed with carcinoid on 1/18/17. He had surgery on 2/3/17 to remove 18" of his ileum small intestine (36 small tumors were...

Hello. I was diagnosed with NETs in February 2023: stage 4, grade 2, well-differentiated low-grade primary 5cm tumor in small intestine, Ki-67 5.4%, with METs...

Hello to all of you who have had cancer diagnosis and treatments.The past couple of months I have been on a roller coaster ride with...

I would like to share some of my symptoms I experienced when I was first diagnosed with High Grade Neuroendocrine Carcinoma in my parotid gland....

Hello everyone. I am new to this site and this is my first post. I had a routine colonoscopy in March and found that I...

My husband was diagnosed with MEM and type one in 2017. He had a modified Whipple surgery in 2018 or they removed his pancreas, Splaine,...

Does anyone have long term experience with larger appendix tumors? Especially women in relation to gynecological issues? My appendix tumor was well-differentiated and slow growing...

Hi UK based where mcas is poorly understood I have been diagnoses with autoimmune gastritis in the last few weeks Symptoms over the last few...

I was diagnosed in May with aggressive NET, which started in the colon and had already spread to the liver with a 6 inch tumor....