Neuroendocrine Tumors (NETs) Support Group

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Comment

I don't think taking Lanreotide would hurt and it's better to get going with this treatment...

https://connect.mayoclinic.org/comment/1237750/

Discussion: Lanreotide Question: Why start before the next scan?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2025

Comment

Yes, I have had 25 Lanreotide injections (24 months) and have similar experience that you cite...

https://connect.mayoclinic.org/comment/1207625/

Discussion: Clay colored bowels & diarrhea side effects with Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9, 2025

Comment

Just about 1 year after starting Lanreotide. My initial diagnosis (discovered during a scan for another...

https://connect.mayoclinic.org/comment/729621/

Discussion: PRRT for NETs: Questioning whether I should continue or not

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 22, 2022

Comment

Hi My husband has a similar situation. He was diagnosed last March with a grade 1,...

https://connect.mayoclinic.org/comment/1216829/

Discussion: I am one year out with my diagnosis just finished 4th round of PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19, 2025

Comment

What I do know is that when I had my liver resection 4 years ago they...

https://connect.mayoclinic.org/comment/994210/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9, 2024

Comment

My son was stage 3 when diagnosed. He went thru an unsuccessful whipple procedure because of...

https://connect.mayoclinic.org/comment/1122194/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 12, 2024

Comment

I have been on lanreotide injections for the last 15 months. It’s hard to differentiate between...

https://connect.mayoclinic.org/comment/1102877/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 10, 2024

Comment

Hello @suelehmann and welcome to the NETs support group on Mayo Connect. You mentioned that you...

https://connect.mayoclinic.org/comment/967157/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 18, 2023

Comment

I'm also on Lanreotide...have had two injections so far. I have 3 TACE treatments with the...

https://connect.mayoclinic.org/comment/830111/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22, 2023

Comment

Have your doctors discussed having Lutathera treatment? My husband has Stage 4 NET that started in...

https://connect.mayoclinic.org/comment/1505529/

Discussion: What helps with muscle aches and weakness after Lanreotide injections?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14 10:49am

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