Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

221 total results

Comment

@rogo, we share a few similarities. I've also been incorrectly diagnosed with asthma for over 30...

https://connect.mayoclinic.org/comment/1268878/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 28 5:19pm

Comment

Ps- I was 74 when I had my right middle lobe removed. Although my tumor was...

https://connect.mayoclinic.org/comment/1255524/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 11 11:59am

Comment

Hi @californiazebra, This is my firs post here, but my diagnosis and treatment is very similar...

https://connect.mayoclinic.org/comment/1071013/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19, 2024

Comment

I was diagnosed with DIPNECH in November 2024 after a segmental left lung resection for 3...

https://connect.mayoclinic.org/comment/1250339/

Discussion: DIPNECH diagnosis. Has anyone had radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 4 12:12pm

Comment

I was diagnosed with DIPNECH at National Jewish Health (NJH) 3/23. I've been coughing and being...

https://connect.mayoclinic.org/comment/906680/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 2, 2023

Comment

@spaztwobe I feel your frustration. It took 12 years to correctly diagnose my lung NETs and...

https://connect.mayoclinic.org/comment/1315349/

Discussion: Diagnosis Difficulties

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28 11:06pm

Comment

Hi - some people do have a chronic cough with DIPNECH. I do not have a...

https://connect.mayoclinic.org/comment/1250753/

Discussion: DIPNECH diagnosis. Has anyone had radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 5 7:21am

Comment

AMD, As you like know, diffuse idiopathic pulmonary neuroendocrine cell hyperplasia (DIPNECH) is an extremely rare...

https://connect.mayoclinic.org/comment/661597/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 11, 2021

Comment

Hello @grec, I'm sure you have a lot of questions about this new diagnosis. On Connect,...

https://connect.mayoclinic.org/comment/1048387/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 10, 2024

Comment

It seems my first lobectomy 6 years ago was dipnech related nets, my second lobectomy in...

https://connect.mayoclinic.org/comment/1229468/

Discussion: Already on oxygen - diagnosed with DIPNECH: What happens next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 4 2:53pm

Digestive Health

Follow

16276

9 minutes ago

Follow

7108

5 hours ago

Pancreatic Cancer

Follow

3084

12 hours ago

Follow

691

14 hours ago

Visiting Mayo Clinic

Follow

5905

18 hours ago