Neuroendocrine Tumors (NETs) Support Group

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Comment

Thanks for the reply Scott. I too am having a 6 mos post surgery follow up...

https://connect.mayoclinic.org/comment/847654/

Discussion: Has anyone chosen the Watch and Wait and regretted that choice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2023

Comment

@kim1965 , I had similar surgery ( distal pancreatectomy, with gallbladder, spleen removal, some metastatic spots...

https://connect.mayoclinic.org/comment/817936/

Discussion: PNET Surgery: My recovery journey

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 27, 2023

Comment

Hello @hollywood817 and welcome to the NETs discussion group on Mayo Connect. I see from your...

https://connect.mayoclinic.org/comment/804933/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2023

Comment

Hi, Surgery, July 2022, was at Hartford Hospital in Connecticut. There was no spread of disease...

https://connect.mayoclinic.org/comment/953818/

Discussion: Anyone have a small pancreatic IPMN cyst that turned out to be cancer?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 25, 2023

Comment

Wow that is good news for you. I have a similar yet different situation. Merkel showed...

https://connect.mayoclinic.org/comment/1034000/

Discussion: Merkel cancer update

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 15, 2024

Comment

https://www.mayoclinic.org/medical-professionals/endocrinology/news/hypoglycemia-role-for-the-selective-arterial-calcium-stimulation-test/mac-20439062 Good luck with all of your testing! Above is an article from Mayo that was...

https://connect.mayoclinic.org/comment/891421/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 7, 2023

Comment

Hello folks, currently being treated at City Of Hope. 10 cm tumor incidentally found on GI...

https://connect.mayoclinic.org/comment/808685/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 9, 2023

Comment

Hi Teresa, We did a PET scan within the first month of discovering the tumors. It...

https://connect.mayoclinic.org/comment/804496/

Discussion: Straight to the liver: Anyone have NETs originating in strange areas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2023

Comment

Hello @avawein I appreciate knowing the date of your surgery. I will be thinking (and praying)...

https://connect.mayoclinic.org/comment/636588/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18, 2021

Comment

Sorry to hear of your condition. If you only have 1 tumor on your liver you...

https://connect.mayoclinic.org/comment/805950/

Discussion: What's the best way to detect liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 3, 2023

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