Neuroendocrine Tumors (NETs) Support Group

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Comment

I also have the same condition . I am 72 , diagnosed 8 years ago ....

https://connect.mayoclinic.org/comment/1142709/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16 11:10pm

Comment

@jhhaas Good idea to get a second opinion. Glad you don’t have coughing. Octreotide also helps...

https://connect.mayoclinic.org/comment/1143685/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18 7:33pm

Comment

It depends on where you live .

https://connect.mayoclinic.org/comment/1158453/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 17 10:34am

Comment

I has dx’d with DIPNECH last fall after having my right middle lobe removed for 1...

https://connect.mayoclinic.org/comment/1143500/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18 11:34am

Comment

I am 75 and was diagnosed 6years ago, I had half my right lung removed and...

https://connect.mayoclinic.org/comment/1142704/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16 11:01pm

Comment

My dipnech was also found by chance, I had fallen down some steps and landed on...

https://connect.mayoclinic.org/comment/1143736/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18 11:23pm

Comment

@astaingegerdm im trying to get help with neurologist but they seem not concerned even tho I’m...

https://connect.mayoclinic.org/comment/788262/

Discussion: Pituitary tumor symptoms: joint, muscle and body aches

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 24, 2022

Comment

Welcome, @links. You may wish to connect with others living with insulinoma neuroendocrine tumor in this...

https://connect.mayoclinic.org/comment/788205/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 23, 2022

Comment

@nohrt4me, you will find many resources and programs for all types of cancers, including chronic management...

https://connect.mayoclinic.org/comment/697755/

Discussion: Stress Management for Cancer: Free online course from Mayo

Support Group: Cancer: Managing Symptoms

Posted: Apr 10, 2022

Comment

Live each and everyday. Don't put off important things that make a difference to you. Be...

https://connect.mayoclinic.org/comment/742098/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 26, 2022

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