Neuroendocrine Tumors (NETs) Support Group

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Comment

University of Michigan Roger Cancer Center is probably the most experienced site in histotripsy that was...

https://connect.mayoclinic.org/comment/1348707/

Discussion: Metastasis to the Liver Caudate Region (Segment 1)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15, 2025

Comment

@susan481 Welcome to Mayo Connect. I have never heard the terms interval progression. Where did you...

https://connect.mayoclinic.org/comment/1326220/

Discussion: Help understand interval progression

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 13, 2025

Comment

FWIW my wife, with a grade 2 stage 4 PNET with a large tumor on her...

https://connect.mayoclinic.org/comment/1320704/

Discussion: PNET in Tail of Pancreas, Portal and Splenic Veins

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 5, 2025

Comment

Just here to share my story and hopefully help others. I was diagnosed at 57 with...

https://connect.mayoclinic.org/comment/1312320/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2025

Comment

Hi - PNet diagnosis in September of ‘20 …. (4) total tumors …. Three in pancreas...

https://connect.mayoclinic.org/comment/1304507/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 15, 2025

Comment

I have functioning gastrinomas the lanreotide helped my symptom control significantly and I started right after...

https://connect.mayoclinic.org/comment/1296743/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2025

Comment

Hi Jon, I also have Gastrinoma PNET of Grade 1, Stage 1, well defined, functional tumor...

https://connect.mayoclinic.org/comment/1287366/

Discussion: Gastrinomas and Whipple procedure

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2025

Comment

Hello - one year ago August of ‘23 I was diagnosed with Acinar Pancreatic Cancer with...

https://connect.mayoclinic.org/comment/1166095/

Discussion: Anyone have Pancreatic Acinar Cell Carcinoma?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 1, 2024

Comment

Hello @matt2024 ! I too have pNET but with liver metastases. Had distal pancreatectomy ( with...

https://connect.mayoclinic.org/comment/1082347/

Discussion: Grade 1 Non-functioning (NF) NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 7, 2024

Comment

@merpreb Merry, Thanks for asking, I'm doing OK, right now. I need to have an upper...

https://connect.mayoclinic.org/comment/232764/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 10, 2018

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