Neuroendocrine Tumors (NETs) Support Group

Hello I was diagonised with Neuron drone Tumor Cancer April 2024 from having a bowl obstruction surgery which was the tumor in the intestines that...

I am looking for anyone that has dealt with this diagnosis and received treatment. My husband was diagnosed July 2018 and we’ve had two reoccurrence...

Hi,I live in Canada and I wonder up to how much it can cost for a possible surgery.I have a mixed adenoneuroendocrine carcinomas (MiNEN), with...

After 8 months on lanreotide I am getting the diet down and no longer losing weight, but my hair loss is beginning to be noticeable....

Hi. I am diagnosed with NET Ki 80% potentially pancreas head and metastas liver. Looking for similar patients and willing to pay specialized doctors in...

5 days ago I had y90 embolization to the liver for metastatic nonfunctional NET. Severe pain and vomiting after procedure. Had to be admitted for...

I have had non-alcoholic cirrhosis of the liver for 7 years. I’m doing really good but after a lung biopsy last week, I have also...

My wife has well differentiated, grade 2 stage 4 NET to the terminal illeum (which was removed) w mets to the liver and pancreas -...

Hi! I had pancreatic NET surgery on Feb.1. Recovering nicely at home. Never had flushing before surgery. Now I experience flushing almost every day. Should...

My husband completed 4 Lutathera treatments and had his first PET/CT with intravenous contrast (Dototate). He has source NET in pancreas metastasized to liver. Diagnosis...