Neuroendocrine Tumors (NETs) Support Group

I’m declining rapidly since last October 2021. My tumor markers Chromogranin A and CA 19.9 (not even mentioning D Dimers) were elevated and my GI...

Hi, I was diagnosed with NETS last May. Since I have had open heart surgery to replace the two valves on the right side of...

Hello. I’m thinking this may have been discussed before. Sorry if I’m asking an old question Is everyone with a pNET on Creon. Pancreatic enzymes...

I have had a full whipple in March 2019. In March 2023 I was diagnosed with neuroendocrine liver metastases (NELM), Grade 2. Since June 23...

I had my first Lanreotide injection four days ago on Monday, but was not told of any diet restrictions. I've seen that I should eat...

It turns out that my husband has actually had this since at least 2014 when he had most of his pancreas removed as well as...

Hi my name is Audra and I was diagnosed with Carcinoid Cancer in 2016. I drove myself to the ER with severe pain and had...

After eight years (yes, eight years/ ten doctors) of chasing ULQ abdominal and back pain, I recently received a diagnosis of an ill-defined, well differentiated,...

I had two 2 cm grade 2 (well-diff) NETs removed with a distal pancreatectomy and splenectomy. So, stage 3 pancreatic cancer. Before surgery, they thought...

Biopsy results for suspicious Merkel Cell carcinoma on nose expected next week. I’m 75, live alone and wondered if it’s best to invest in temporary...