Neuroendocrine Tumors (NETs) Support Group

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Comment

@ggiinnaa You'll enjoy life a lot more without the chronic cough. Ask about octreotide injections. Life...

https://connect.mayoclinic.org/comment/1264531/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22 10:51pm

Comment

@sophiarose I’m sorry you’re having such a rough time with treatment. I have been taking the...

https://connect.mayoclinic.org/comment/1128152/

Discussion: Short acting Ocreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 21, 2024

Comment

Great! It sounds like you've been doing your research. Please keep us posted. I'd love to...

https://connect.mayoclinic.org/comment/838724/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6, 2023

Comment

At minimum every 6 months, but also as needed if symptoms dictate. My endocrinologist is very...

https://connect.mayoclinic.org/comment/843305/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 14, 2023

Comment

We received the confirmation from Mayo. His diagnosis is Atypical Stage 3/grade 2. He was given...

https://connect.mayoclinic.org/comment/1330147/

Discussion: Anyone have lung NETs lining your pleura?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18 6:44pm

Comment

I have had four rounds of Lutathera. I continue to be on an injection of Lanreotide...

https://connect.mayoclinic.org/comment/806746/

Discussion: Recurrence with Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 5, 2023

Comment

I was diagnosed March 2022 stage 4 grade 2 18%, primary tumour on the tail of...

https://connect.mayoclinic.org/comment/1049788/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12, 2024

Comment

@nana120 I wasn't told of any dietary restrictions when I started my octreotide injections, but maybe...

https://connect.mayoclinic.org/comment/937831/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 28, 2023

Comment

I asked my oncologist about the NO EPI and if it should be on my medical...

https://connect.mayoclinic.org/comment/137547/

Discussion: My Husband was newly diagnosed with Carcinoid Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 31, 2017

Comment

What treatment did they prescribe when your tumors were found 16 years ago? How long have...

https://connect.mayoclinic.org/comment/1179256/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 24, 2024

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