Neuroendocrine Tumors (NETs) Support Group

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Hopefully there is someone out there still monitoring this. I have chronic NET that started in...

https://connect.mayoclinic.org/comment/1171106/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10, 2024

Comment

Hi , welcome to the DIPNECH club 🥴. You’ve come to the right place! I also...

https://connect.mayoclinic.org/comment/1392355/

Discussion: Biopsy showed DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 12, 2025

Comment

I had a pet scan that showed 20 small nodules, 10 on each lung. Had a...

https://connect.mayoclinic.org/comment/1392966/

Discussion: Has anyone had NET show up on CT scan, I had CT scan in 23

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 13, 2025

Comment

Wow hats off to you on your journey what an experience you learned from and handled...

https://connect.mayoclinic.org/comment/821372/

Discussion: NETs: Competing Pathologies--how to sort it all out?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 5, 2023

Comment

I found out today that I have 2 NET’s in my lung. Found inadvertently while scanning...

https://connect.mayoclinic.org/comment/816366/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 23, 2023

Comment

In reply to k8lyn23, Hi I had mentioned the LACNET which is a very good Los...

https://connect.mayoclinic.org/comment/815722/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 22, 2023

Comment

@firepowr if you don’t mind me asking, what have they said about yours that is considered...

https://connect.mayoclinic.org/comment/813521/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 18, 2023

Comment

Hi @kim2022 I see this post is from November of last year. Hope all is going...

https://connect.mayoclinic.org/comment/807987/

Discussion: Stage 4, High-Grade Neuroendocrine carcinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8, 2023

Comment

Welcome @sueannsellers. I'm glad to hear that you are being referred to Mayo Clinic for consultation...

https://connect.mayoclinic.org/comment/806557/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 5, 2023

Comment

Hello @larenn and welcome to Mayo Connect. It sounds as if you have a rather complex...

https://connect.mayoclinic.org/comment/793773/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 7, 2023

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