Neuroendocrine Tumors (NETs) Support Group

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Comment

Sometimes there are special 3rd party advocates for patients on Lanreotide. I'm familiar with that. It's...

https://connect.mayoclinic.org/comment/1188028/

Discussion: Case manager provided by your health insurance plan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 10, 2024

Comment

Hello @panorman3, You are asking good questions. Some members of this group have had a reduction...

https://connect.mayoclinic.org/comment/1251157/

Discussion: My carcinoid tumor is inoperable: What are the best ways to control?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 5, 2025

Comment

Ill continue monthly Somatuline depot (Lanreotide) shot to contain cancer. Quarterly MRIs will determine future action...

https://connect.mayoclinic.org/comment/853246/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2, 2023

Comment

That is wonderful news I get my second Followup scans on July 3 What are you...

https://connect.mayoclinic.org/comment/1338931/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 1, 2025

Comment

@grammato3: My experience with Somatuline Depot 120mg injections for NET is definitively NOT the same as...

https://connect.mayoclinic.org/comment/1334543/

Discussion: Should NET w/liver met patient stop rx that has Seratonin?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 24, 2025

Comment

Fortunately I don’t really have any negative reactions to the Lanreotide injections, just the day after...

https://connect.mayoclinic.org/comment/843588/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 15, 2023

Comment

@liefylaura, you might find these related discussions helpful - First Lanreotide Injection: Any tips about diet...

https://connect.mayoclinic.org/comment/921237/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 29, 2023

Comment

Hello Diet information can be found at https://netrf.org/. I have stage 3 lung NETs and have...

https://connect.mayoclinic.org/comment/899083/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2023

Comment

Do you take lanreotide or octreotide injections? If so do I have side effects? Thanks! Marcia

https://connect.mayoclinic.org/comment/1173603/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 14, 2024

Comment

@hopeful33250: Hi Teresa, my oncologist dismisses Lanreotide causing my “boil-sore” problem. My primary internal med physician...

https://connect.mayoclinic.org/comment/1250457/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 4, 2025