Neuroendocrine Tumors (NETs) Support Group

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Comment

It sounds like it would have been within a month, but our son is getting married...

https://connect.mayoclinic.org/comment/1528196/

Discussion: New spots showing up

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 16 10:45am

Comment

@liefylaura, you might find these related discussions helpful - First Lanreotide Injection: Any tips about diet...

https://connect.mayoclinic.org/comment/921237/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 29, 2023

Comment

Hello Diet information can be found at https://netrf.org/. I have stage 3 lung NETs and have...

https://connect.mayoclinic.org/comment/899083/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2023

Comment

Do you take lanreotide or octreotide injections? If so do I have side effects? Thanks! Marcia

https://connect.mayoclinic.org/comment/1173603/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 14, 2024

Comment

@hopeful33250: Hi Teresa, my oncologist dismisses Lanreotide causing my “boil-sore” problem. My primary internal med physician...

https://connect.mayoclinic.org/comment/1250457/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 4, 2025

Comment

His oncologist provided the form. The form is called PANO Service Request Form. PANO stands for...

https://connect.mayoclinic.org/comment/1423184/

Discussion: Cost of treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 25, 2025

Comment

Hi Ocreotide and Lanreotide are administered differently and some individuals may have distinct side effects and...

https://connect.mayoclinic.org/comment/1429026/

Discussion: PET Ga-68 Dodatate Scan & Octreotide LAR Injections

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 2, 2025

Comment

@dbamos1945, were you told that Somatuline Depot (lanreotide) interacts with serotonin? Were you able to talk...

https://connect.mayoclinic.org/comment/970769/

Discussion: Should NET w/liver met patient stop rx that has Seratonin?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 26, 2023

Comment

@skjones56 I just saw that you stated no current symptoms in your original comment. My bad...

https://connect.mayoclinic.org/comment/1497951/

Discussion: Neuroendocrine Tumor - no treatment plan method

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 4 11:15am

Comment

After radiation and chemo my LNet was reduced in size by 50%. I am now on...

https://connect.mayoclinic.org/comment/1003892/

Discussion: Atypical Lung NET treated with radiation: What was your outcome?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 26, 2024

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