Neuroendocrine Tumors (NETs) Support Group

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@hopeful33250: Hi Teresa, my oncologist dismisses Lanreotide causing my “boil-sore” problem. My primary internal med physician...

https://connect.mayoclinic.org/comment/1250457/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 4 3:29pm

Comment

Fortunately I don’t really have any negative reactions to the Lanreotide injections, just the day after...

https://connect.mayoclinic.org/comment/843588/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 15, 2023

Comment

@grammato3: My experience with Somatuline Depot 120mg injections for NET is definitively NOT the same as...

https://connect.mayoclinic.org/comment/1334543/

Discussion: Should NET w/liver met patient stop rx that has Seratonin?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 24 8:52pm

Comment

@liefylaura, you might find these related discussions helpful - First Lanreotide Injection: Any tips about diet...

https://connect.mayoclinic.org/comment/921237/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 29, 2023

Comment

Hello Diet information can be found at https://netrf.org/. I have stage 3 lung NETs and have...

https://connect.mayoclinic.org/comment/899083/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2023

Comment

Do you take lanreotide or octreotide injections? If so do I have side effects? Thanks! Marcia

https://connect.mayoclinic.org/comment/1173603/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 14, 2024

Comment

@dbamos1945, were you told that Somatuline Depot (lanreotide) interacts with serotonin? Were you able to talk...

https://connect.mayoclinic.org/comment/970769/

Discussion: Should NET w/liver met patient stop rx that has Seratonin?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 26, 2023

Comment

After radiation and chemo my LNet was reduced in size by 50%. I am now on...

https://connect.mayoclinic.org/comment/1003892/

Discussion: Atypical Lung NET treated with radiation: What was your outcome?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 26, 2024

Comment

I don't think taking Lanreotide would hurt and it's better to get going with this treatment...

https://connect.mayoclinic.org/comment/1237750/

Discussion: Lanreotide Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15 5:26pm

Comment

My husband has neuroendocrine pancreatic cancer . Diagnosed July of 2024. stage 3 grade 1. He...

https://connect.mayoclinic.org/comment/1451439/

Discussion: Anyone had positive results from Lanreotide injections?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 2 12:10pm

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