Neuroendocrine Tumors (NETs) Support Group

Hello, I am 51 years old and was diagnosed in April. My primary tumor is in the intestine and the doctors want to do surgery...

Hello Everyone I hope ALL is well today. It’s been a long time since I’ve been on here. I’ve been through a lot health wise...

‘Im a 74 yr old woman. A NET tumor in my small intestine was removed about 18 months ago. This month a CT found two...

Are these tumors benign? I was told it is small and most was removed by endoscopy but in an area in the duodenum where surgery...

I was diagnosed with NET 2 weeks ago. I had symptoms of obstructed bowel which led to a CT scan showing a tumor in mesentery,...

They did a rt hemicolectomy and small bowel resection. They also did a wedge resection of my liver. They removed all of the tumor. Liver...

I was recently diagnosed with a NET in my small intestine. Dont know much and some of the internet sites are freaking me out about...

Has anyone suffered from diarrhea several mos after intestinal surgery for NET.

What do I need to know about NETS? I would like to know about this cancer. it started in small intestine and has gone to...

Just an update….I am 72 years old with stage 4 grade 2 neuroendocrine cancer (functional but no symptoms ). Primary in my small intestine with...

I would like to know if it’s safe to use a hearing pad to relieve back pain due to a NET in the small intestine....

had a tumor removed from small intestine 5/2022.that metastasis to the liver started octretide shots every 28 days,shots did not work very well with the...

I have been diagnosed with a small NET (6mm)in illeum of small intestine. I have a nutritionist friend who claims I can kill cancer cells...

After 2 years of searching. CT scans, PET scans, all negative. Finally , the very last test, I would have been cleared. After a enteroscopy...

Hi Everyone,Has anyone had an NET that originated in the jejunum (small intestine) that has spread to liver? If so, I am wondering how your...

4 yrs ago routine prostate MRI showed nets in my Ilium of small intestine, surgery 2022 to remove 2 feet of small intestine and about...

20 months after NET found in small intestine and already spread to liver. I have had resection, monthly octreotide injections, and Lutathera. The cancer seemed...

Hello everyone. I'm new to the journey. My husband was diagnosed last October with NETS. Surgery was done in January. During surgery seeding was seen...

I have primary NET in the small intestine, spread to stomach wall and liver. I just got my 3rd monthly Somatuline (Lanreotide) injection 4/12. About...

I was diagnosed in Feb. 2022 with a NET tumor in the small intestine that was determined to be stage 4. I just returned for...