Neuroendocrine Tumors (NETs) Support Group

Hey all, my husband has recently been diagnosed with a 4.9 cm PNet gastrinoma grade 2 stage 4. After upper gi bleed , double pulmonary...

I had Whipple surgery about 8 months ago. Still having some complications, like dumping syndrome, diabetes. Does anyone eat and drink at same time? Also...

I had a Whipple procedure in March 2019 with no traces of NEC left behind. In Feb 2023 my scan confirmed recurrence in Liver, largest...

Hello, Brittany here I had a Whipple to remove my grade two neuroendocrine tumor from the head of my pancreas. I am very lucky to...

I have been discharged from the hospital for about 5 days, have so far lost about 30 pounds. including 4 at home. What strategy has...

Looking to speak with others who have had a successful Whipple procedure, but cancer metastasized to your liver

Anyone had Whipple, still unable to control hypoglycemia. There's only so much food I can eat, and I've gained too much weight trying to control...

I had a Whipple surgery to remove grade 1, stage 1 well defined gastrinoma neuroendocrine tumour in May 2020 located at the pancreas head. No...

Presented to ER with shortness of breath, chest pain and severe pain to both legs. Incidentally found pancreatic Neuroendocrine tumor. Ct/MRI done and surgeon confirms...

Good Day, It's been recently discovered that I have a tumor or lesion on my pancreas. I'm 20 years post whipple, and about 6 months...

I am 73 year old diagnosed with a 1 cm NET of pancreas that was found incidentally on a CT scan that was done for...

I have had a full whipple in March 2019. In March 2023 I was diagnosed with neuroendocrine liver metastases (NELM), Grade 2. Since June 23...

Just watched an hour long Q&A session on NETs with Dr. Eric Liu who is dedicated to NETs at his clinic in Denver. The questions...

Hello to All, I am joining this group from the Diabetes/Endocrine group. In July 2015 I was diagnosed with 2 insulinomas - both removed surgically...

My husband was diagnosed with MEM and type one in 2017. He had a modified Whipple surgery in 2018 or they removed his pancreas, Splaine,...

Perhaps you have had surgery for chronic diverticulitis, cancer of the digestive tract, a Whipple procedure, bariatric surgery, or maybe even gallbladder surgery. Surgeries of...

I am 64 and my PNET was discovered after an EUS because my gastroenterologist could not find a solution to my chronic diarrhea. I had...

Good day, After suffering for 5 years with no answers, I was diagnosed with non staged NET-VIP tumors in the pancreas in 11/2021. On 1/22...