Neuroendocrine Tumors (NETs) Support Group

My wife has well differentiated, grade 2 stage 4 NET to the terminal illeum (which was removed) w/ mets to the liver and pancreas which...

Hello all. I am new here and somewhat awkward as I was once a cancer patient and now my precious wife of 38 blessed years...

There seems to be a general distrust of all doctors. That is sad. No matter how much homework I do, no matter how much I...

After eight years (yes, eight years/ ten doctors) of chasing ULQ abdominal and back pain, I recently received a diagnosis of an ill-defined, well differentiated,...

Recently I had a positive 5-HIAA urine test and a 64 CU Dotatate PET scan that lit up parts of duodenum and found a 4mm...

I am 64 and my PNET was discovered after an EUS because my gastroenterologist could not find a solution to my chronic diarrhea. I had...

I was diagnosed in ‘21 (51 y/o) with SB net and metastatic tumor in the mesentery lymph nodes. All successfully resected. The metastasis in mesentery...

Hello. My sister was recently diagnosed with a pancreatic neuroendocrine tumor that has metastasized to her liver. She went into the ER presenting with signs...