Neuroendocrine Tumors (NETs) Support Group

Interested in others experience to understand imaging. Radiologist reports "Hepatic metastases have mildly increased in size from prior CT Dec 2024 and MRI November 2024."...

I’m questioning if I should continue PRRT for NETs on my liver. I feel much worse after starting PRRT

Pancreatic nets on the tail moved to liver. It might be nonfuntional as it was found by accident and was shocking is an understatement.Do the...

I was diagnosed with a neuroendocrine tumour on my small bowel in 2014. This was found as I went into crisis. In June 2014 my...

What do I need to know about NETS? I would like to know about this cancer. it started in small intestine and has gone to...

2016 my husband lost his colon and part of his small intestine following an colonoscopy. He now has an ileostomy which makes treating the cancer...

My wife was found to have a tumor in the left adrenal gland and it has complicated her liver and is swelling, what do you...

Below are links with additional information.https://l.smartnews.com/p-15eSVMB/JS1UQ5Histotripsy treatment, FDA-approved therapy that kills cancer using sound and water, led by team at Providence Mission Hospital | abc7.comhttps://abc7.com/amp/post/histotripsy-treatment-fda-approved-therapy-kills-cancer-using-sound-water-led-team-providence-mission-hospital/15648669/Below...

I have been diagnosed with PNets grade 2 that metastasized to liver. The past few months I have been dealing with acites. Currently doctor is...

has anyone used mayo clinic in Rochester Minnesota for carcinoid tumors. the diagnosis was carcinoid tumors in the liver. I am looking for the best...

Hello I was diagonised with Neuron drone Tumor Cancer April 2024 from having a bowl obstruction surgery which was the tumor in the intestines that...

Recently I had a positive 5-HIAA urine test and a 64 CU Dotatate PET scan that lit up parts of duodenum and found a 4mm...

I am looking for anyone that has dealt with this diagnosis and received treatment. My husband was diagnosed July 2018 and we’ve had two reoccurrence...

Hi. I am diagnosed with NET Ki 80% potentially pancreas head and metastas liver. Looking for similar patients and willing to pay specialized doctors in...

Hi I am new here and just want to have a good place to chat with people that share my thoughts and concerns about my...

After 8 months on lanreotide I am getting the diet down and no longer losing weight, but my hair loss is beginning to be noticeable....

Hi! I had pancreatic NET surgery on Feb.1. Recovering nicely at home. Never had flushing before surgery. Now I experience flushing almost every day. Should...

Hi there, I was recently diagnosed with a Neuroendocrine tumor in my rectum. After a rectal biopsy and correlating morphology and Immunohistochemistry, the diagnosis was...

Hello All, I'm new to the NET world and feeling very lost (uninformed). Mine was found in my appendix in the pathology report by chance...

I was diagnosed with a small bowel obstruction (SBO) in 2022 that turned out to be Stage 2 NETS. Had surgery & did fine until...