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Public Support Group 934 total results
Discussions (74)
Neuroendocrine Tumors (NETs) Q&A with a NETs Expert
Just watched an hour long Q&A session on NETs with Dr. Eric Liu who is dedicated to NETs at his clinic in Denver. The questions...
Liver and Pancreas Stable
Blessings all. I am so encouraged by the many posts and wonderful input as my wife and I are now taking a new turn with...
PRRT treatment how does it work?
My husband has small bowel Neuroendocrine cancer that had metastasized to liver, lymph nodes,and bones he had surgery to remove primary tumor in small bowel,...
Small Intestine Resection
Hello Everyone I hope ALL is well today. It’s been a long time since I’ve been on here. I’ve been through a lot health wise...
GI NET attached to pancreas supposedly non-producing
I had surgery to remove 3 nets from my bowel in September 2023One was attached to my pancreasThe primary was in my illeum and the...
Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver
Hi everyone. I am new to the group and wondered what kinds of symptoms others with Pnet go through. I was diagnosed just under a...
NET's and possible liver transplant discussion
Today, during our meeting with our NET cancer team, we were reviewing the results from CT, MRI, and PET scan, and in general we are...
NETs: Scheduled for small intestine resection: What to expect?
I was diagnosed with NET 2 weeks ago. I had symptoms of obstructed bowel which led to a CT scan showing a tumor in mesentery,...
High risk surgery. Is it worth it?
I had my primary net removed, along with a right hemicolectomy, three other mets and 23 lymph nodes in Sept 2023.A follow up Petscan in...
Recurrence of Neuroendocrine Tumor
Hi anyone with NETS recurrence? I had laparoscopy surgery in January 2024 to remove a tumor from my small intestines, and several sounding lymph nodes...
New To NETS - Stage 4 / Grade 1
Hello, my fellow NETS friends, My name is Eileen. I am 42 years old and incidentally discovered I have Stage 4/Grade 1 NETS when I...
Anyone with an insulinoma have only therapies instead of surgery?
I really recently got diagnosed with malignant insulinoma. About a year ago I collapsed at home and paramedics took me to the hospital (small town...
68Ga DOTATATE Positron Emission Tomography (PET) at Mayo Clinic
@amyh2439 @tresjur @joannem @gaylejean @lucci50 @derekd @gulzar @joanney @jenchaney727@dzerfas @lorettanebraska @wordnoid @trouble and @upblueeyes @ahtaylor @heidilynn4 @junebug15 @tomewilsonThis article regarding 68Ga DOTATATE Positron Emission Tomography...
Pituitary Tumor (Questions about symptoms and treatment).
Hello, I have some questions. Hope someone with similar situation or medical professional could provide info. 55 YOM finally diagnosed with Mature Pluri-hormonal PIT1-Liniage Macro...
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