Neuroendocrine Tumors (NETs) Support Group

Hello all. I am new here and somewhat awkward as I was once a cancer patient and now my precious wife of 38 blessed years...

Here is the summary of my situation. I am 63 years man with a history of a chest mass in 2019 found to be a...

I am going to have to seek a treatment; what do you suggest1tumor.I have a carcinoid tumor in the Centrist part of my body and...

I’ve been on this Mayo support group for a couple of years, but was always the one answering questions and making suggestions, not the one...

Hi all, just wanted to check in with an update for everyone. Sorry it has taken some time, treatments, vacation, holidays and sickness have all...

After eight years (yes, eight years/ ten doctors) of chasing ULQ abdominal and back pain, I recently received a diagnosis of an ill-defined, well differentiated,...

@amyh2439 @tresjur @joannem @gaylejean @lucci50 @derekd @gulzar @joanney @jenchaney727@dzerfas @lorettanebraska @wordnoid @trouble and @upblueeyes @ahtaylor @heidilynn4 @junebug15 @tomewilsonThis article regarding 68Ga DOTATATE Positron Emission Tomography...

I really recently got diagnosed with malignant insulinoma. About a year ago I collapsed at home and paramedics took me to the hospital (small town...

Just a up date on my journey of net been on my shots octretide for two yrs. had four treatment of prrt, not going very...

had a tumor removed from small intestine 5/2022.that metastasis to the liver started octretide shots every 28 days,shots did not work very well with the...

I was told yesterday that my NET has spread to my spine L1 and my periportal lymph node I did Lanreotide and Ocreotide injections for...

I would like to know who are using these processes and how they are working. I have a carcinoid tumor in my mesentery inoperableand i...

I was diagnosed with DIPNECH at National Jewish Health 3/23. Two months later, I had a lumpectomy on my breast. The pathology came back with...