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Public Support Group 820 total results
Discussions (75)
DO I need 2 teams if I have both Nets-lung and DIPNECH?
I have been diagnosed with both NETs-Lung and DIPNECH. Do I need two teams to be involved since I have two different conditions or one...
Recently diagnosed with a NET in my middle lobe of my right lung.
It has been a frustrating process with the dr office handling my case. Fighting to get approval for a NET Spot Scan. I’ve been having...
Lung nodule could be slow growing carcinoid: Watch and wait is scary
HiBeen diagnosed with 9mm lung nodule lower left node. Been told it was on old ct since 2017/18 at 4mm and that they are going...
Could a mass on adrenal gland be linked to my carcinoid lung tumor?
I am 75. Had right upper lung lobe removed in August 2022Have multiple 5 cm carcinoid tumorettes in lungCould a mass on my adrenal gland...
I've had 3 cancers: Thyroid cancer, Lung Cancer and Breast Cancer
Why does it seem once you get one of these cancers thyroid cancer, lung cancer or breast cancer you all 3? I have had all...
I have 3 neuroendocrine tumors in left lung: Can I handle radiation?
After all the radiation, my oncologists recommend 30 radiations and numerous related ct scans. I wonder if these tumors having been there, one the size...
I am 75 and have carcinoid tumors NET in lungs
One doctor suggested that I have DIPNECH I do have small carcinoids throughout my lungs. They were discovered when an Adenocarcinoma and my top right...
Diagnosis Difficulties
I was diagnosed last year with a lung tumor and had my left lower lobe of my lung removed. I was diagnosed with a carcinoid...
Biopsy showed DIPNECH
I received the results of a lung biopsy last week & it showed DIPNECH. I see an oncologist next week to discuss treatment options. Pulmonologist...
A couple of questions
One, I'm curious about NETs pain. Do they themselves cause pain or only when they are pressing on or blocking other things? I have lung...
stage 1A Net removed from upper left lobe
I had a stage 1 nodule removed from left lobe now have a new 7mm in lower lobe 3 months after surgery and they said...
Typical Carcinoid Tumor in Lungs
I was diagnosed in April 2016 with a Typical Carcinoid Tumor in my right lower lobe, approx. 3 cms. It has remained stable, per most...
DIPNECH diagnosis. Has anyone had radiation?
Right middle lobectomy in Nov '24 at Mayo Scottsdale. 3 carcinoids removed were all malignant and 1 lymph node involved out of 23 taken. DIPNECH...
Anyone have a small pancreatic IPMN cyst that turned out to be cancer?
Have CT scans every 6 months to monitor both recurrent breast cancer and neuroendocrine lung cancer. CT showed 7 mm cyst that looks like side...
On choosing a surgeon for pulmonary carcinoid resection…
For those of you who’ve had a lung carcinoid removed, how did you decide on a particular thoracic surgeon or center? What helped you decide?...
What is a normal range for Chromogranin A test? Mine was 99 in 2021.
I had my first Chromogranin A blood test in 2021. 2 months after I had the lower lobe of my left lung removed due to...
Neuroendocrine cells in Breast and Lungs DIPNECH
I was diagnosed with DIPNECH at National Jewish Health 3/23. Two months later, I had a lumpectomy on my breast. The pathology came back with...
NET Lobectomy
I had a typcial stage 1 NET. I had a lobectomy. I started having chills 6 weeks post op. Antibiotics helped. I have fluid around...
Different teams
Does anyone know what the different colors mean or how you are placed in said group? I had a lung Tumor so they put me...
How do I know somatostatin is in my system?
Good morning all. I have a question.How do I know if Somatostatin is in my system? Is it necessary for a PETSCAN Copper 64 show...
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