Neuroendocrine Tumors (NETs) Support Group

I am grade 2 metastatic to the liver of unknown origin. diagnosed in Oct 2024. Dr suspects it originated in the GI Track. Octreotide has...

PRRT Update: Today I got the absolute best news😁 Had my PRRT follow-up appt with the Radiologists. After reviewing both of my surgery path reports...

In reference to my wife: Recent C/T of abdomen and pelvis showed "increased hypervascularity in the haptic metastasis in the caudate". Initial discovery Background: NET...

Can you tell me how you were diagnosed? I have had several G68 pet scans, (nothing lighting up intensely), multiple endoscopy and they cannot find...

Hi, I was dx with pancreatic nets in 2010, had a resection in my pancreas. There were some nodules left. I had octreotide for carcinoid...

Interested in others experience to understand imaging. Radiologist reports "Hepatic metastases have mildly increased in size from prior CT Dec 2024 and MRI November 2024."...

I was diagnosed with a small bowel obstruction (SBO) in 2022 that turned out to be Stage 2 NETS. Had surgery & did fine until...

I have been getting dizzy spells since I started OctreotideThursday the 14th was the worst it even made me vomitAnyone else have this and what...

Just watched an hour long Q&A session on NETs with Dr. Eric Liu who is dedicated to NETs at his clinic in Denver. The questions...

Good morning. My prayers and blessings to all on this page of interest. This is a new journey for me. Underwent a lung biopsy due...

Sorry I missed the group last night I so wanted to make it home from the dentist to discuss my situation I have a functioning...

My husband has small bowel Neuroendocrine cancer that had metastasized to liver, lymph nodes,and bones he had surgery to remove primary tumor in small bowel,...

Hi, I live in part of the U.k. and had an op to remove an atypical carcinoid tumour from my inferior lobe at the end...

My husband was diagnosed with carcinoid on 1/18/17. He had surgery on 2/3/17 to remove 18" of his ileum small intestine (36 small tumors were...

Hello all. I am new here and somewhat awkward as I was once a cancer patient and now my precious wife of 38 blessed years...

I am going to have to seek a treatment; what do you suggest1tumor.I have a carcinoid tumor in the Centrist part of my body and...

Here is the summary of my situation. I am 63 years man with a history of a chest mass in 2019 found to be a...

I’ve been on this Mayo support group for a couple of years, but was always the one answering questions and making suggestions, not the one...

Hi all, just wanted to check in with an update for everyone. Sorry it has taken some time, treatments, vacation, holidays and sickness have all...

After eight years (yes, eight years/ ten doctors) of chasing ULQ abdominal and back pain, I recently received a diagnosis of an ill-defined, well differentiated,...