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Neuroendocrine Tumors (NETs) Support Group

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Discussions (227)
Root canal without Epinephrine
Sorry I missed the group last night I so wanted to make it home from the dentist to discuss my situation I have a functioning...
Last active: Jul 8, 2025
Atypical carcinoid tumour of the lung
Hi, I live in part of the U.k. and had an op to remove an atypical carcinoid tumour from my inferior lobe at the end...
Last active: Nov 12, 2025
Should I see a specialist?
Hello! I am 43 F and having episodes of hypoglycemia for years that have gotten more frequent. I’m also constantly hungry. I mentioned this to...
Last active: Feb 10, 2024
Have you ever had hiccups with or after chemotherapy?
We all know what hiccups are, right? They are involuntary contractions of the diaphragm — the muscle that separates your chest from your abdomen and...
Last active: Dec 6, 2025
How do you mentally handle reoccurrence?
Hi, I am struggling. I just had my 6 month surveillance mri for my pancreatic net. (It has been 3 years since my distal pancrectomy...
Last active: Mar 11 12:38am
Diagnosing or Ruling out Insulinoma
Fairly new to this forum as I navigate the slow process of diagnosing or definitively ruling out an Insulinoma. First visit with an endocrinologist last...
Last active: Aug 7, 2025
PRRT for stage 4 pNET: Tips for managing complete hair loss?
After going through many years of misery & countless investigative scans, I was finally diagnosed with Stage 4 pNETs on 4 July 2023: I had...
Last active: Apr 7 12:43pm