Neuroendocrine Tumors (NETs) Support Group

I am 73 year old diagnosed with a 1 cm NET of pancreas that was found incidentally on a CT scan that was done for...

Good day, After suffering for 5 years with no answers, I was diagnosed with non staged NET-VIP tumors in the pancreas in 11/2021. On 1/22...

Just wondering the criteria for staging. My 1.6cm pNET was removed and discovered it spread to one lymph node. Very little of it was found...

I had a distal pancreatomy with splenectomy on March 10th for NET in pancreas. All was well. Good recovery. Went on Monday for my 6months...

Confused by the information online re: NETs. There is a 2.3 x 1.7 mass on the tail of my pancreas with no vascular activity. The...

My husband completed 4 Lutathera treatments and had his first PET/CT with intravenous contrast (Dototate). He has source NET in pancreas metastasized to liver. Diagnosis...

Looking to connect with anyone who has an insulinoma. My tumor presents in the pancrease. I currently have chemotherapy bi weekly since July 2022. This...

After a surprise CT Scan revealed a 2CM Neuroendocrine Tumor on the tail of my pancreas in February I am finally going in for surgery...

Am trying to find out more about net in the head of pancreas any information would be appreciated this makes a year I have add...

I’m a 64 year old woman, I’ve have colon issues for decades among other issues. They found my tumor on a CT scan, I don’t...

I have two tumors in body of pancreas 1.4 cm and a 6 mm. One was biopsies and apparently it’s a NET. Was told to...

I had surgery to remove 3 nets from my bowel in September 2023One was attached to my pancreasThe primary was in my illeum and the...

I was recently diagnosed with PNETS saw an oncologist and had a second opinion through University of Kansas. Through that session I learned my tumors...

Does anyone understand my CT w/contrast results? Details Study Result Impression IMPRESSION: -Two 1 cm pancreatic lesions are unchanged. The lesion in the neck appears...

Hello, recently diagnosed with Pancreatic NETS. Unsure of type other FNA which listed grade 1 and KI67 @ .97%. Scheduled for body and Distal surgery...

Hello the NET community, I am a 63 yr old male with generally good health and BMI. About a year and half ago I had...

I had two 2 cm grade 2 (well-diff) NETs removed with a distal pancreatectomy and splenectomy. So, stage 3 pancreatic cancer. Before surgery, they thought...

Hi! I had pancreatic NET surgery on Feb.1. Recovering nicely at home. Never had flushing before surgery. Now I experience flushing almost every day. Should...

Blessings all. I am so encouraged by the many posts and wonderful input as my wife and I are now taking a new turn with...

Hello, I am new to the discussion. My husband was recently diagonosed with nets starting from the pancreas. We are still processing this. Are there...