Neuroendocrine Tumors (NETs) Support Group

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Comments (359)

Hello @latricebj and welcome to Mayo Connect. Here is some information on all of the functions...

https://connect.mayoclinic.org/comment/1203918/

Discussion: Can anyone share information about NET in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 4, 2025

Small intestine

https://connect.mayoclinic.org/comment/748082/

Discussion: Just got the news… stage 2 Carcinoid tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 10, 2022

@kenb58, I moved your post and replies to this existing discussion about small intestine NETs. -...

https://connect.mayoclinic.org/comment/1269972/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 30, 2025

Small intestine resection for NETS.

https://connect.mayoclinic.org/comment/1299420/

Discussion: Any one have experience with Dr J Maxwell (surgical oncologist) at MD

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 7, 2025

They found myNET tumor in the small intestine after numerous endoscopies also. It was finally an...

https://connect.mayoclinic.org/comment/1436727/

Discussion: Diagnosis Frustrated: How you were diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 12, 2025

I have NET cancer of the liver it started in the small intestine tumor was removed...

https://connect.mayoclinic.org/comment/750858/

Discussion: Newly diagnosed with NET in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 17, 2022

Sorry primary is the small intestine and secondary the liver.

https://connect.mayoclinic.org/comment/1352923/

Discussion: PRRT and lanreotide questions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 21, 2025

Indeed nearly a meter of my small intestine was removed, along with a mass of lymph...

https://connect.mayoclinic.org/comment/1393614/

Discussion: Has anyone had NET show up on CT scan, I had CT scan in 23

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2025

@pjsheridan2022, I moved your question about small bowel obstruction and surgery to this related discussion. Click...

https://connect.mayoclinic.org/comment/877981/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 13, 2023

How long ago was part of your small intestine removed?

https://connect.mayoclinic.org/comment/1216939/

Discussion: I am one year out with my diagnosis just finished 4th round of PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19, 2025

Hello @bubbles2023. You will notice I have moved your post, and the replies, into an existing...

https://connect.mayoclinic.org/comment/889243/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 3, 2023

Thank you again. Mine did originate in my small intestine.

https://connect.mayoclinic.org/comment/1231843/

Discussion: How does Alcohol use affect Liver NET?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7, 2025

The condition is known as SIBO (Small Intestine Bacterial Overgrowth) which is why antibioticas can be...

https://connect.mayoclinic.org/comment/746260/

Discussion: What helps with gas and pain after surgery?

Support Group: Cancer: Managing Symptoms

Posted: Sep 6, 2022

My DIL received a biopsy report of “carcinoid NET in small intestine, stage 1”… What is...

https://connect.mayoclinic.org/comment/882063/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 20, 2023

Hi, breck from Iowa! I’m from Florida, have NETS in my liver and small intestine.. Welcome!

https://connect.mayoclinic.org/comment/1169290/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 7, 2024

Hello, i was recently diagnosed with small intestine NET and spread to three lymph nodes. The...

https://connect.mayoclinic.org/comment/1014130/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 12, 2024

Good to see you, @cu2. You might find some helpful post in this related discussion: -...

https://connect.mayoclinic.org/comment/1271252/

Discussion: Small Intestine Resection

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2025

Interesting. I too am at Mayo JAX. I wonder why you are being treated for your...

https://connect.mayoclinic.org/comment/831958/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

I was diagnosed with a NET in my liver, the source of the tumor is in...

https://connect.mayoclinic.org/comment/749917/

Discussion: Newly diagnosed with NET in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2022

Did you have the small intestine net removed? Was the liver Mets found when you were...

https://connect.mayoclinic.org/comment/1216806/

Discussion: MRI or CatScan as follow up imaging for metastatic liver tumor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19, 2025

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