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Public Support Group 21 total results
Comments (19)
Hello @kathyzee and welcome to Connect. I can understand your concern and wanting to connect with...
https://connect.mayoclinic.org/comment/1344435/
@elementalmiss, I'd like to add my welcome. I added your question to the Neuroendocrine Tumors (NETs)...
https://connect.mayoclinic.org/comment/1378363/
Hello, I was diagnosed a year ago with NET in my left lung. I had surgery...
https://connect.mayoclinic.org/comment/1231241/
Yes, I mean Lung Atypical NET
https://connect.mayoclinic.org/comment/938969/
Hi @dak10 and @mimmy. Thank you for sharing your lung NETs info. I also have typical...
https://connect.mayoclinic.org/comment/835869/
Hi @dzerfas, welcome to Connect. There are a number of people talking about carcinoid tumors in...
https://connect.mayoclinic.org/comment/134262/
Thank you for all the information. I have nonfunctioning lung to liver Net just found out...
https://connect.mayoclinic.org/comment/671705/
@netnan I also have lung NETs (atypical carcinoids) and DIPNECH with 50+ tumors scattered across both...
https://connect.mayoclinic.org/comment/1107096/
Hello @netnan, had left lung NET atypical carcinoid tumor. It was a little bigger - between...
https://connect.mayoclinic.org/comment/1106611/
Hi @bcraft. I'm new to this site too and what brought me here was a search...
https://connect.mayoclinic.org/comment/838450/
Im sorry to hear you are going through that. It is actually my brother. He had...
https://connect.mayoclinic.org/comment/1325183/
Greetings....I am still standing and living a normal life at 85 with my disease in the...
https://connect.mayoclinic.org/comment/801669/
What is the difference with Atypical Nets. And typical? This is gig666/ have they say just...
https://connect.mayoclinic.org/comment/1029596/
I had a small nodule removed last year that was confirmed to be neuroendocrine lung net....
https://connect.mayoclinic.org/comment/1343726/
Diagnosed 1/27/23 lung NET Bronchoscope on 1/24/23 results on 1/26/23 lymph nodes chest ok but nodule...
https://connect.mayoclinic.org/comment/803360/
@gig666 How did your PET scan turn out? Was it a DOTATATE scan specifically for NETs?...
https://connect.mayoclinic.org/comment/1033637/
I too am Atypical lung net. It has spread to liver and several vertebrae in my...
https://connect.mayoclinic.org/comment/939666/
I am 69 years old and am diagnosed with multiple liver metastasis from lung carcinoid tumor....
https://connect.mayoclinic.org/comment/825019/
@annie12345 Typical carcinoids are not from smoking (smokers get atypical carcinoids). Nothing you did. My brother...
https://connect.mayoclinic.org/comment/1330066/
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