Neuroendocrine Tumors (NETs) Support Group

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Comments (906)

Lanreotide

https://connect.mayoclinic.org/comment/1532314/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: 5 days ago

@destinjim, I moved your question to the NETs support group. You might also be interested in...

https://connect.mayoclinic.org/comment/1476055/

Discussion: Lanreotide side effects: Anyone having GI issues?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6 5:34pm

Before I was put on Lanreotide I had no symptoms Lanreotide gave me such a horrible...

https://connect.mayoclinic.org/comment/1249217/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 3, 2025

Hello. As mentioned by others, Lanreotide is expected to keep the tumors stable. My husband was...

https://connect.mayoclinic.org/comment/1449250/

Discussion: Anyone had positive results from Lanreotide injections?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 29, 2025

Taking Lanreotide? This might be helpful (thanks Dr. Google) https://www.drugs.com/sfx/lanreotide-side-effects.html

https://connect.mayoclinic.org/comment/971093/

Discussion: Anyone had nauseous, gas burping as symptoms for NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 27, 2023

Did your endoscopy include a a biopsy that confirmed your NETs diagnosis? Somatuline Depot (Lanreotide) can...

https://connect.mayoclinic.org/comment/1495835/

Discussion: Someone can help?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1 4:56pm

I have Carcinoid Tumors and have been on Lanreotide for over three years. I had already...

https://connect.mayoclinic.org/comment/1513372/

Discussion: Has anyone taken Prolia for bone loss after NETs treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 24 7:56am

Are you referring to the generic version of lanreotide (Somatuline Depot) vs. the brand name drug...

https://connect.mayoclinic.org/comment/1334782/

Discussion: Should NET w/liver met patient stop rx that has Seratonin?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 25, 2025

When i had my monthly Lanreotide injection yesterday I was told they were switching to Octreotide....

https://connect.mayoclinic.org/comment/1427574/

Discussion: PET Ga-68 Dodatate Scan & Octreotide LAR Injections

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 31, 2025

@rose4jim2417 Lanreotide injections

https://connect.mayoclinic.org/comment/1408712/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 5, 2025

@pavlina60, I'm sure that's one upgrade you didn't want to get. You may appreciate this discussion...

https://connect.mayoclinic.org/comment/824676/

Discussion: PNET Surgery: My recovery journey

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 11, 2023

I get Lanreotide once a month.

https://connect.mayoclinic.org/comment/855807/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 7, 2023

Hello @lbaron54915 and welcome to Mayo Connect. I am glad to hear that you have had...

https://connect.mayoclinic.org/comment/792344/

Discussion: NET-VIPoma pancreatic tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 4, 2023

Hey Mark, I've had Octreotide, Lanreotide, and SI resection surgery. I'm currently doing monthly Lanreotide shots....

https://connect.mayoclinic.org/comment/1410494/

Discussion: NET's Metastasis to Brain

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 7, 2025

Interesting, hope the lanreotide works better. My husband had the rash before his shots, so not...

https://connect.mayoclinic.org/comment/1269534/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2025

Lanreotide is supposed to stop the NETs from growing.

https://connect.mayoclinic.org/comment/933192/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 20, 2023

Read the side effects of Lanreotide they include pancreatitis.

https://connect.mayoclinic.org/comment/926206/

Discussion: Anyone still have pancreas pain while taking Lanteotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 8, 2023

Hello @arleighna, I am sorry to hear of the problems you are having with lanreotide. It...

https://connect.mayoclinic.org/comment/1215188/

Discussion: I have 3 neuroendocrine tumors in left lung: Can I handle radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 17, 2025

How often do you get Lanreotide?

https://connect.mayoclinic.org/comment/855629/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 6, 2023

Great news What is the difference between octreotide and lanreotide I currently switched doctors and she...

https://connect.mayoclinic.org/comment/727432/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 16, 2022

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