Neuroendocrine Tumors (NETs): Discussions | Page 8

https://connect.mayoclinic.org/comment/1038336/

Discussion: Treatment for GI NET with liver mets not working: Options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22, 2024

Hello @cgshields1129 and welcome to the NETs support group on Mayo Connect. It sounds as if...

https://connect.mayoclinic.org/comment/1227266/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1 8:00pm

Indeed nearly a meter of my small intestine was removed, along with a mass of lymph...

https://connect.mayoclinic.org/comment/1393614/

Discussion: Has anyone had NET show up on CT scan, I had CT scan in 23

Support Group: Neuroendocrine Tumors (NETs)

Posted: 4 days ago

Please read my comments and experience on Histotripsy (of the liver). 2 articles above you.

https://connect.mayoclinic.org/comment/1199558/

Discussion: I recently learned of histotripsy treatment for metastatic NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 29, 2024

My oncologist said because the liver and colon feed from same blood supply??

https://connect.mayoclinic.org/comment/1242535/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 21 5:52pm

I only had a biopsy on my liver. I have many tumors of all sizes on...

https://connect.mayoclinic.org/comment/1237754/

Discussion: Lanreotide Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15 5:34pm

Thank you, always like positive feedback. It is great you are doing well. The oncologist said...

https://connect.mayoclinic.org/comment/1220030/

Discussion: PNETs: What comes first? Surgery or try to shrink tumor with chemo?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 23 6:46pm

Caitrina, I am glad to see your comments after the liver debunking. It is helpful to...

https://connect.mayoclinic.org/comment/780435/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 3, 2022

I was diagnosed with stage 3 atypical carcinoid in dec of 2023. Ki-67 number was 5....

https://connect.mayoclinic.org/comment/1266745/

Discussion: Atypical Lung NET treated with radiation: What was your outcome?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25 4:39pm

If the tumors are confined to the liver only, has your doctor suggested a liver directed...

https://connect.mayoclinic.org/comment/1047345/

Discussion: Spreading NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 8, 2024

I have my liver ablation this week. I’ll let you know how that goes.

https://connect.mayoclinic.org/comment/1171949/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2024

Hello Teresa, Curious to know what surgeries you had? Any involving the liver or pancreas?

https://connect.mayoclinic.org/comment/1262523/

Discussion: New and concerned about my wife.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20 9:15am

@laree That sounds like a really interesting and promising 2 punch approach, especially considering 25% ki67....

https://connect.mayoclinic.org/comment/1342304/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 6 11:55am

Hello @bluebird1953 I'm sorry to hear that your husband is having such difficulty with carcinoid cancer....

https://connect.mayoclinic.org/comment/1307930/

Discussion: Anyone have swelling with liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19 3:12pm

My Husband was diagnosed with GI tract stage 4 Neuroendocrine carcinoid that spread to liver, lymph...

https://connect.mayoclinic.org/comment/1048688/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 10, 2024

We have already had the primary removed in March 23, along with gall bladder, spleen, and...

https://connect.mayoclinic.org/comment/952558/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2023

Hi Thanks for info, it’s the talk of things happening to liver etc that worries me,...

https://connect.mayoclinic.org/comment/1296122/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4 1:52am

I have pNET grade 2 stage 4 ( due to metastases in liver). I had distal...

https://connect.mayoclinic.org/comment/881155/

Discussion: My Sister and Best Friend

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2023

I had a CT scan for something else. There are tumors grade 1 in my liver...

https://connect.mayoclinic.org/comment/1301250/

Discussion: Anyone had liver surgery to remove liver metastasis from GI NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10 3:02pm

It seems to be! That’s what I had I have similar type pancreatic primary metatastic to...

https://connect.mayoclinic.org/comment/1326387/

Discussion: Captem

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 13 11:23am

Neuroendocrine Tumors (NETs) Support Group