Neuroendocrine Tumors (NETs): Discussions | Page 1

Hi Neuroendocrine Group, I am Neuroendocrine Breast Cancer (rare) with mets in liver and bones. It...

https://connect.mayoclinic.org/comment/766898/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 29, 2022

Thank you for your encouragement. The exhaustion comes & goes. The primary is a carcinoid, very...

https://connect.mayoclinic.org/comment/977617/

Discussion: After liver embolization: Looking for the best diet + food suggestions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 9, 2023

Hello @dbamos1945, I understand that you are looking to connect with others who have had NET...

https://connect.mayoclinic.org/comment/775970/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 21, 2022

How was his liver debulking surgery? How long ago was it? What grade is he and...

https://connect.mayoclinic.org/comment/898937/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2023

Thought I would give an update. I just made several trips to Mayo in Rochester. I...

https://connect.mayoclinic.org/comment/1248641/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 2 11:11am

Me. 2 yrs. PNET with liver mets, stage 4. Also endometrial cancer There is a good...

https://connect.mayoclinic.org/comment/1225138/

Discussion: 68Ga DOTATATE Positron Emission Tomography (PET) at Mayo Clinic

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 30 6:13am

Hello! I have similar diagnosis - pNET and liver metastases. Surgery for the pNET and debulking...

https://connect.mayoclinic.org/comment/1076200/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28, 2024

I don't know why they said liver?? I have not been on anything for my stomach....

https://connect.mayoclinic.org/comment/1239487/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 17 8:26pm

Welcome, Christine. You're not alone. I moved your message to this existing discussion: - Newly diagnosed...

https://connect.mayoclinic.org/comment/750122/

Discussion: Newly diagnosed with NET in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2022

He’s done blood work and says it’s okay even though liver enzymes are high and WBC...

https://connect.mayoclinic.org/comment/728985/

Discussion: PRRT for NETs: Questioning whether I should continue or not

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 21, 2022

I just visited Mayo Rochester. Was diagnosed in April 2023 with Neuroendocrine cancer of the small...

https://connect.mayoclinic.org/comment/873758/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 6, 2023

Waiting is some times the hardest part. Pnet is the acronym for pancreatic neuroendocrine tumors. Mine...

https://connect.mayoclinic.org/comment/917143/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22, 2023

Mollie, Bless your Heart.... and your kidneys, and your liver!! Prayers for gaining strength and for...

https://connect.mayoclinic.org/comment/182062/

Discussion: Mayo Presentation at the Northwoods NETs group - 1/14/18

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 27, 2018

We did find this out that there is extra help for Medicare patients with the drug...

https://connect.mayoclinic.org/comment/1135041/

Discussion: Short acting Ocreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 2, 2024

Hi Everyone! I had my liver embolization on the right side of my liver which is...

https://connect.mayoclinic.org/comment/805129/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2023

@tinerobison My wife was diagnosed with NET in April 22, with about a 3x5cm mass on...

https://connect.mayoclinic.org/comment/997134/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 14, 2024

I'm stage 4 pancreatic and liver cancer, tail end pnets I've had no surgeries,radiation very little...

https://connect.mayoclinic.org/comment/803506/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 29, 2023

My large tumor is in the liver. Anyone know of how that size located there is...

https://connect.mayoclinic.org/comment/1203264/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 3 3:12pm

I too have grade 2 NET liver metastasis but there was no mention of necrosis. Sorry...

https://connect.mayoclinic.org/comment/1062149/

Discussion: pNET with liver metastases: What is necrosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2024

In my case: I was told that the NET in small bowel (near duodenum) metastasized to...

https://connect.mayoclinic.org/comment/1241121/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 20 12:03am

Neuroendocrine Tumors (NETs) Support Group