Neuroendocrine Tumors (NETs) Support Group

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Comments (417)

I’ve been taking octreotide injections for over 3 years for lung NETs. Cause fatigue especially the...

https://connect.mayoclinic.org/comment/1098642/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 3, 2024

@hopeful33250 Thanks for the reply! I guess the Pulmonologist at Mayo presented my case at the...

https://connect.mayoclinic.org/comment/271271/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 1, 2020

Teresa, Thanks! He ordered a couple of repeat CT scans, had many of my previous images...

https://connect.mayoclinic.org/comment/271263/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 30, 2019

Hello @megansims I can certainly understand your concern about your symptoms and also about your intermittent...

https://connect.mayoclinic.org/comment/271250/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 5, 2019

Sakota- Multifocal is a category of lung cancer that since 1960 was a redefined bronchioloalveolar carcinoma...

https://connect.mayoclinic.org/comment/232727/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 8, 2018

Hello ya all. Had a rough time signing back in, but finally did the deed. Hope...

https://connect.mayoclinic.org/comment/134269/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 11, 2018

I guess this is the end of the run on PRRT. I have lung nets with...

https://connect.mayoclinic.org/comment/257060/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 14, 2021

Thanks! @hopeful33250 those articles are helpful! I’m a caregiver. My mom was diagnosed with NETs (Primary...

https://connect.mayoclinic.org/comment/311779/

Discussion: Afinitor - Anyone have pneumonitis as a side effect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 22, 2020

Hi @aclanton @terradean My largest 2.6 cm tumor was destroyed with microwave ablation. Not a fun...

https://connect.mayoclinic.org/comment/1076548/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28, 2024

EmilyFaith, l can hear your fear in your words. My question is do you have a...

https://connect.mayoclinic.org/comment/1062216/

Discussion: Describe your recovery from lung NET surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2024

@jball77 You might consider messaging your surgeon through the patient portal to see if breathing exercises...

https://connect.mayoclinic.org/comment/1057641/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 26, 2024

I was recently diagnosed with NETs in my lungs, small ones. I had the all mighty...

https://connect.mayoclinic.org/comment/1054468/

Discussion: NET lung with Liver Metastasis (stage 4)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20, 2024

Hi @grec I shared my details earlier in the thread if you want to scroll back....

https://connect.mayoclinic.org/comment/1048486/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 10, 2024

I have had nodules in has of lu mgs 6+ years, scanned for 4 years, then...

https://connect.mayoclinic.org/comment/1030562/

Discussion: High risk surgery. Is it worth it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 9, 2024

77 years old, female, no symptoms still being diagnosed. Tumor in left lower lung and left...

https://connect.mayoclinic.org/comment/1022376/

Discussion: Carcinoid tumor right middle lobe.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 25, 2024

Welcome, @lchaney1951. I moved your question to the Neuroendocrine Tumors (NETs) support group here: https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/ where...

https://connect.mayoclinic.org/comment/1022343/

Discussion: Carcinoid tumor right middle lobe.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 25, 2024

@mlbschuler @grec I have both DIPNECH and lung NETs and yes, it is scary to have...

https://connect.mayoclinic.org/comment/1004928/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 27, 2024

What I did was to do a deep dive into the process. First I set my...

https://connect.mayoclinic.org/comment/1000033/

Discussion: Possible NET: Waiting for the endo appointment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19, 2024

@lcbrazen100 I just stopped my AI this last July after 5 years...doctor wanted me to go...

https://connect.mayoclinic.org/comment/984628/

Discussion: Anyone have neuroendocrine tumor (NETs) of the breast?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 21, 2023

@pamelasantacruz I'm just over 5 years now since diagnosis, chemo, radiation, and two surgeries (lumpectomy for...

https://connect.mayoclinic.org/comment/968340/

Discussion: Anyone have neuroendocrine tumor (NETs) of the breast?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 20, 2023

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