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Comments (184)
The appointment with the endocrinologist is for pituitary which is what got me in door because...
https://connect.mayoclinic.org/comment/676077/
My experience is rather like your husband's only many less tumors found during surgery. I have...
https://connect.mayoclinic.org/comment/137535/
@tiambeth70: You have found a good source of information, both from Mentors and NET peers going...
https://connect.mayoclinic.org/comment/1507074/
@donbarks: I too have primary in small bowel (grade 1, stage4) with metastases in liver (no...
https://connect.mayoclinic.org/comment/1497043/
That’s exactly what happened to me in 2022; had every imaginable test possible & last test...
https://connect.mayoclinic.org/comment/1348205/
Back in 2019 they said NED. But I’m not sure as right now because I had...
https://connect.mayoclinic.org/comment/773423/
Liked your reply, especially the SOB part made me laugh so thanks for that humor. Yeah...
https://connect.mayoclinic.org/comment/868031/
@tgsenn70 & et al: so sorry you are in the position of choosing NET tumor treatment....
https://connect.mayoclinic.org/comment/1415807/
I have short gut syndrome. I only have 2ft of my small intestines. I had a...
https://connect.mayoclinic.org/comment/1428178/
I have zero symptoms. As per my NET specialist, nine more lymph nodes should be removed...
https://connect.mayoclinic.org/comment/1281674/
My husband’s journey started In 2015 with stomach pains nothing diagnosed. Then in 2019 he was...
https://connect.mayoclinic.org/comment/1121892/
Hi @Hope33250, a trip to ER complaining of bloating and abdominal pain, and a CT scan...
https://connect.mayoclinic.org/comment/1014237/
In my case: I was told that the NET in small bowel (near duodenum) metastasized to...
https://connect.mayoclinic.org/comment/1241121/
Followup answer: My invasive surgery (I’m a relatively healthy 80 year old man) was for a...
https://connect.mayoclinic.org/comment/783340/
I had 5 surgeries in 13 months, due to diverticulitis. Very bad bowel blockage, had a...
https://connect.mayoclinic.org/comment/1353724/
Hi all, hoping spring is good and well for you. I’m circling back to my post...
https://connect.mayoclinic.org/comment/1275884/
Hi mgb20, following a very uncomfortable blockage (I had had no carcinoid syndrome), on July 1,...
https://connect.mayoclinic.org/comment/890032/
My situation sounds a little similar in that they marked my tumor from a CT scan...
https://connect.mayoclinic.org/comment/944168/
Hi, in case it's of interest, the following describes my recent NET experience. Following a blockage,...
https://connect.mayoclinic.org/comment/782928/
Hi jestjohn, I’d be interested to know the results of your Dec. 15, 2023 PET scan....
https://connect.mayoclinic.org/comment/1015601/
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