Neuroendocrine Tumors (NETs) Support Group

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Comments (135)

Hello 👋🏻 @hopeful33250 I just got my results from my tumor markers and this is been...

https://connect.mayoclinic.org/comment/774452/

Discussion: Is high CA. 19.9 a good indicator of malignancy?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 17, 2022

HI, I'm new to this site. In 2016 I had a bowell blockage that turned out...

https://connect.mayoclinic.org/comment/748393/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 11, 2022

I too have small cell cancer Mets 4 .to lungs and liver. 2017 Sept. Started out...

https://connect.mayoclinic.org/comment/232890/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Mar 21, 2019

Hi Teresa: I would be glad to share my journey with you and your followers. In...

https://connect.mayoclinic.org/comment/107245/

Discussion: Ga-68 for detecting NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2, 2017

Hello @hopeful33250, I've registered with Gilda's Club in Royal Oak a few years ago but only...

https://connect.mayoclinic.org/comment/102001/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 21, 2016

@mgb20, I totally agree with @phyllisden ! It was probably 15 years before I was finally...

https://connect.mayoclinic.org/comment/831438/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24, 2023

Looking back, I had symptoms of severe diarrhea 5 years before diagnosis. Nightime diarrhea including incontinence....

https://connect.mayoclinic.org/comment/1202313/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 2 9:52am

Hello @bubbledalmia and welcome to the NETs discussion on Mayo Connect. I can understand why you...

https://connect.mayoclinic.org/comment/1179413/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 24, 2024

Thank you so much for your suggestions. I had colon surgery more than 20 years ago...

https://connect.mayoclinic.org/comment/896903/

Discussion: NET symptoms despite follow-up lab work ok

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 16, 2023

I’m home now after surgery and 8 nights in hospital, mostly in the ICU. It was...

https://connect.mayoclinic.org/comment/844203/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 16, 2023

I was diagnosed in 2003 with an unknown primary (still not found) and tumors in my...

https://connect.mayoclinic.org/comment/762517/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 18, 2022

My husband had a small bowl resection in 1990. It was not cancer related, but he...

https://connect.mayoclinic.org/comment/835897/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 1, 2023

mgb20, Reading your post was like reading my story - 5 years ago (3/18) I, too,...

https://connect.mayoclinic.org/comment/830736/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 23, 2023

I also had multiple small lesions in my liver and a few larger ones. I decided...

https://connect.mayoclinic.org/comment/813447/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 18, 2023

Phyllisden, thank you for the information. At this time, I will continue with no diet restrictions...

https://connect.mayoclinic.org/comment/1148212/

Discussion: Diet restrictions with Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 27, 2024

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