Neuroendocrine Tumors (NETs) Support Group

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Comments (898)

@tomrennie I am happy to hear 😊 yes healing good still achy tho I've been for...

https://connect.mayoclinic.org/comment/1500632/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8 2:41am

@pammy229 Hello Pamela and welcome to the NETs support group on Mayo Connect. This is a...

https://connect.mayoclinic.org/comment/1198172/

Discussion: Any advice for someone recently diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

@ocean5: So sorry you are having this NET lung progression. I just joined a NET support...

https://connect.mayoclinic.org/comment/1242672/

Discussion: DIPNECH diagnosis. Has anyone had radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 22, 2025

I have breast cancer as well as lung NETs and DIPNECH. My breast cancer is unrelated;...

https://connect.mayoclinic.org/comment/1206124/

Discussion: Concerns after lobectomy for carcinoid tumor in lung

Support Group: Lung Cancer

Posted: Jan 7, 2025

Many of you know her as @merpreb or Merry, Volunteer Mentor. To survive lung cancer (twice)...

https://connect.mayoclinic.org/comment/232951/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Apr 19, 2019

@stephanieann Though I have not had any surgeries for NETs, I have had a fair amount...

https://connect.mayoclinic.org/comment/1528052/

Discussion: Previous heart surgery & risks of surgery to remove lung net

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 16 8:37am

My husband's first tumor was found in 1995. He was rediagnosed Stage 4 in 12/2023. The...

https://connect.mayoclinic.org/comment/1548868/

Discussion: Liver NETs: Anyone has extreme swelling in feet and ankles?

Support Group: Neuroendocrine Tumors (NETs)

Posted: 3 days ago

Just saw your post. Ia m two plus weeks out of surgery (lobectomy) for a cancerous...

https://connect.mayoclinic.org/comment/232876/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Mar 17, 2019

I’m so sorry you’re going through this. Have you had a chest CT done? Afinitor can...

https://connect.mayoclinic.org/comment/1004006/

Discussion: Afinitor - Anyone have pneumonitis as a side effect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 26, 2024

I will be having the lower lobe of my left lung removed on Tuesday. Feels a...

https://connect.mayoclinic.org/comment/1460204/

Discussion: Anyone have a pneumonectomy? How are you doing now?

Support Group: Lung Cancer

Posted: Dec 13, 2025

STOMACH NET! Having a STOMACH NET is indeed an esoteric experience and different from the lung,...

https://connect.mayoclinic.org/comment/896811/

Discussion: Anyone have a stomach NET?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 16, 2023

I am 75 and was diagnosed 6years ago, I had half my right lung removed and...

https://connect.mayoclinic.org/comment/1142704/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16, 2024

There are many other threads going on lung NETs and DIPNECH. If you use the search...

https://connect.mayoclinic.org/comment/1285781/

Discussion: I am 75 and have carcinoid tumors NET in lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20, 2025

My understanding is a grade 3 of the lung is considered small cell or non small...

https://connect.mayoclinic.org/comment/813610/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 18, 2023

Yes, thanks for the advice. I plan on getting a 2nd opinion and will spend time...

https://connect.mayoclinic.org/comment/1030506/

Discussion: What questions should I ask oncologist tumor types and chemo treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 9, 2024

My hiccups come when I lay down also. My timer is in right lung and back...

https://connect.mayoclinic.org/comment/265614/

Discussion: Have you ever had hiccups with or after chemotherapy?

Support Group: Cancer: Managing Symptoms

Posted: Oct 9, 2019

@tomrennie I don't no how to do I just ask my lung specialist to refer me...

https://connect.mayoclinic.org/comment/1429630/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 3, 2025

Surgery done may 3rd gor tumor on sm intestine surgery being schedule for lung tumor then...

https://connect.mayoclinic.org/comment/873232/

Discussion: Neuroendocrine tumor in small bowel with lymph nodes involved

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 5, 2023

I went to Mayo for a 2nd opinion because the University of Minnesota was trying to...

https://connect.mayoclinic.org/comment/1088194/

Discussion: On choosing a surgeon for pulmonary carcinoid resection…

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16, 2024

Hi @blm1024 Welcome! Glad you’re in the other side of surgery. I have typical lung carcinoids...

https://connect.mayoclinic.org/comment/1350349/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17, 2025

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