Neuroendocrine Tumors (NETs): Discussions | Page 1

I was diagnosed with Carcinoid Cancer with Carcinoid Syndrome in 2003. By that time I was...

https://connect.mayoclinic.org/comment/741205/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 24, 2022

Annamay, I have a limited diet for different reasons. Some ideas: 1. eat and snack all...

https://connect.mayoclinic.org/comment/1278893/

Discussion: Low fiber diet with dairy intolerance and other food sensitivities

Support Group: Digestive Health

Posted: Apr 10 6:45pm

I found this helpful article about nutrition and NETs - Eating Right with Neuroendocrine Tumors https://netrf.org/old-for-patients/living-with-nets/nutrition/...

https://connect.mayoclinic.org/comment/1280184/

Discussion: NETS and Nutrition

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12 1:14pm

Thanks for your update. It made me realize I haven't even looked at this thread since...

https://connect.mayoclinic.org/comment/1272515/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2 10:41am

Oh my word - this is exactly what has happened to me!!!!! I changed my high...

https://connect.mayoclinic.org/comment/1285386/

Discussion: I am 75 and have carcinoid tumors NET in lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: 3 days ago

I wish I could say something really positive to help you. I am just not sure...

https://connect.mayoclinic.org/comment/1287239/

Discussion: I am 75 and have carcinoid tumors NET in lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: 13 hours ago

That’s my plan know matter WHAT to LIVE long and STRONG!! I have scans every six...

https://connect.mayoclinic.org/comment/1279960/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12 9:46am

I'm sorry to hear of your dad's diagnosis. I know it's scary and you're smart to...

https://connect.mayoclinic.org/comment/1273233/

Discussion: Found out my dad has cancer: They say it’s Neuroendocrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 3 10:32am

Every kind of NETS and their location and advance of tumors results in different prognosis for...

https://connect.mayoclinic.org/comment/1264718/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 23 9:19am

Thank you!!! Right I’m four years strong in this now. I go to Georgia Cancer Specialist...

https://connect.mayoclinic.org/comment/1271324/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31 8:48pm

Wow I am sitting here wanting everyone to SURVIVE but unfortunately that won’t happen. I do...

https://connect.mayoclinic.org/comment/1285648/

Discussion: Small Intestine Resection

Support Group: Neuroendocrine Tumors (NETs)

Posted: 2 days ago

I agree, having a positive attitude & outlook on life is key! I try to live...

https://connect.mayoclinic.org/comment/1275181/

Discussion: Diet restrictions with Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 5 8:56pm

@cordelia73 - my tumors have been stable, no new growth for the last 2 yrs. There...

https://connect.mayoclinic.org/comment/1287223/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: 16 hours ago

I wish you the best too. I live as normal a life as I can, any...

https://connect.mayoclinic.org/comment/1287697/

Discussion: I am 75 and have carcinoid tumors NET in lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: 39 minutes ago

Hello and thank you glad to be back. Not scheduled yet I have an appointment at...

https://connect.mayoclinic.org/comment/1271304/

Discussion: Small Intestine Resection

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31 7:52pm

Are you currently suffering any symptoms? Because if not, the "waiting game" as you call it...

https://connect.mayoclinic.org/comment/1281617/

Discussion: Cu-64 Dotatate PET results show no malignancy. What’s next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 14 10:51am

I feel like he has just given up. He has constant diareaha that only slows down...

https://connect.mayoclinic.org/comment/873195/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 5, 2023

Dear puddknocker, I had a big para in the skull base in the vagus nerve, I...

https://connect.mayoclinic.org/comment/856706/

Discussion: Paraganglioma / Carotid Body Tumor Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 8, 2023

Hi! I am so sorry you are going through this. I just wondered if you were...

https://connect.mayoclinic.org/comment/1245817/

Discussion: NET so worried

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 26 9:16am

@gangcarotid1 No not a New Englander! But both my husband and I are British!! We immigrated...

https://connect.mayoclinic.org/comment/1264167/

Discussion: Was it difficult to determine if your paraganglioma was active?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22 12:35pm

Neuroendocrine Tumors (NETs) Support Group