Neuroendocrine Tumors (NETs) Support Group

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Comments (1,498)

Thank you it was beautiful. And we all need reminders to be happy live each day...

https://connect.mayoclinic.org/comment/233002/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Aug 29, 2019

Thank you for sharing your experience. I am very fortunate and realize there are so many...

https://connect.mayoclinic.org/comment/232997/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Aug 14, 2019

Hello @mrsbv, I am sorry to hear of all of the health issues you are facing...

https://connect.mayoclinic.org/comment/232970/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Jul 24, 2019

@merpreb and to all of you beautiful women...I am going through my own medical issues and...

https://connect.mayoclinic.org/comment/232969/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Jul 24, 2019

@cwm1 I hope you been walking nonstop? I sure was wandering like a lost soul after...

https://connect.mayoclinic.org/comment/232968/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Jul 23, 2019

I too “had” elderly parents to attend to and it seemed I was alone in that...

https://connect.mayoclinic.org/comment/232962/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Jul 8, 2019

I just left Mayo, Rochester on Monday. My insulinoma was removed and so far so good....

https://connect.mayoclinic.org/comment/134666/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 26, 2018

I was diagnosed with insulinoma last week based on an outpatient fasting test. I only needed...

https://connect.mayoclinic.org/comment/134660/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 25, 2018

Well I’m going to Mayo on the 11th for my 6 month gallium scan. I’ve been...

https://connect.mayoclinic.org/comment/940462/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 2, 2023

Thank you so much for the detailed response. I don’t think I would be able to...

https://connect.mayoclinic.org/comment/933174/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 20, 2023

Hello @gneiss50 I appreciate you sharing your journey with NETs. Many of us with NETs share...

https://connect.mayoclinic.org/comment/758993/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 9, 2022

We are strong! She has gone from stage 4 mass on pancreas and too numerous tumors...

https://connect.mayoclinic.org/comment/889675/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 3, 2023

Great point. My drainage was unusual - my doc thinks the resident took out a stitch...

https://connect.mayoclinic.org/comment/990297/

Discussion: Questions I should ask before surgery for Lung NETs?

Support Group: Lung Cancer

Posted: Jan 2 11:56am

My doctors would not listen to me at all! Just kept saying they don't know why...

https://connect.mayoclinic.org/comment/979673/

Discussion: NET symptoms despite follow-up lab work ok

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 13, 2023

Hi, My oncologist has sent me to palliative care and they are helping but nothing tried...

https://connect.mayoclinic.org/comment/734944/

Discussion: Pituitary and pNET: Can't do the things I love anymore

Support Group: Brain Tumor

Posted: Aug 7, 2022

Hi @bellom, welcome. I moved your post to this existing discussion: - Just diagnosed with pancreatic...

https://connect.mayoclinic.org/comment/922124/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 31, 2023

Everyone I consulted with--from UNM to NYU--said the only treatment for NET in breast is the...

https://connect.mayoclinic.org/comment/907122/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 3, 2023

Thank you @tomrennie ! I think looking and acting positively is the best we can do!...

https://connect.mayoclinic.org/comment/1040350/

Discussion: Meet @pavalina60

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 26 6:28am

Yes l have Nerocarcinoid, cancer! NETS. My breathing is labored, but l am going to do...

https://connect.mayoclinic.org/comment/1033764/

Discussion: High risk surgery. Is it worth it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 15 1:15am

Well, Gigg66 it sounds like you and your doctors do have a plan. I'm glad to...

https://connect.mayoclinic.org/comment/1062304/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4 9:38pm

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