Neuroendocrine Tumors (NETs) Support Group | Page 6

Hi mbg20, My husband has recently had a small bowel resection on Feb 27. He originally...

https://connect.mayoclinic.org/comment/830442/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22, 2023

I am right with you with your feelings. I had stage 4 Neuroendocrine cancer of small...

https://connect.mayoclinic.org/comment/163994/

Discussion: The Roller Coaster Ride of Cancer

Support Group: Cancer

Posted: Dec 4, 2019

Same experience here with dietician giving printouts which I could have done myself. The food they...

https://connect.mayoclinic.org/comment/1474468/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Jan 4 2:33pm

How much was removed did they reconnect, did you wear a colostomy bag On Saturday, May...

https://connect.mayoclinic.org/comment/1312048/

Discussion: Any one have experience with Dr J Maxwell (surgical oncologist) at MD

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 24, 2025

I can't offer any advice but can empathize. Mine started in my small bowel in 2020...

https://connect.mayoclinic.org/comment/1171118/

Discussion: Experience w/ watch and wait approach for metastatic liver tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10, 2024

@destinjim: Your symptoms sound so familiar, Lanreotide injections slowly relieved these symptoms for me; however, I...

https://connect.mayoclinic.org/comment/1467863/

Discussion: Lanreotide side effects: Anyone having GI issues?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 26, 2025

Definitely get a 2nd opinion & see a NETS surgical oncologist. Your symptoms are exactly like...

https://connect.mayoclinic.org/comment/1294227/

Discussion: Neuroendocrine Tumor - no treatment plan method

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 1, 2025

@fraaseo I live in Far North Qld Australia. I found out in 2021 I had net...

https://connect.mayoclinic.org/comment/1402161/

Discussion: My carcinoid tumor is inoperable: What are the best ways to control?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 26, 2025

I also concur with all of the above responses; I’m on year 3… Mine started as...

https://connect.mayoclinic.org/comment/1369496/

Discussion: Neuroendocrine Tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 12, 2025

Hi, I have had a resection in my small bowel 12/24. It took about a year...

https://connect.mayoclinic.org/comment/1271695/

Discussion: Small Intestine Resection

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 1, 2025

Hello. My husband was diagnosed with grade 1 stage 4 NET last year, with primary tumor...

https://connect.mayoclinic.org/comment/1283983/

Discussion: Cu-64 Dotatate PET results show no malignancy. What’s next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 17, 2025

I had surgery for carcinoid tumors in my small bowel and abdominal cavity 12 years ago,...

https://connect.mayoclinic.org/comment/752939/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 23, 2022

I am being evaluated for a host of symptoms...including flushing, spiking BP that is episodic, fast...

https://connect.mayoclinic.org/comment/673460/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21, 2022

@vinnie694 & @Ins83: DIDDO Ins83! I think Vinnie and my NET small bowel cancer is very...

https://connect.mayoclinic.org/comment/1414228/

Discussion: I have a neuroendocrine tumour in the small bowel and liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 12, 2025

Hi, My name is Penny. My wife, Cindy, had surgery on December 6 in which they...

https://connect.mayoclinic.org/comment/797408/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16, 2023

Thanks for the update. It is helpful to know how things evolve. So tumors were identified...

https://connect.mayoclinic.org/comment/1171377/

Discussion: Experience w/ watch and wait approach for metastatic liver tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10, 2024

Hello @mukul123 and welcome to Mayo Connect. I see that you are looking for direction for...

https://connect.mayoclinic.org/comment/786179/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 18, 2022

Hello. I wanted to add some information about the testosterone issues you mentioned. My husband was...

https://connect.mayoclinic.org/comment/1385205/

Discussion: Has anyone had NET show up on CT scan, I had CT scan in 23

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 2, 2025

"My question is simply, would not eating these foods if I am not having problems change...

https://connect.mayoclinic.org/comment/1143047/

Discussion: Diet restrictions with Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 17, 2024

My tumor was about the size of a twinkie with arms constricting my small bowel in...

https://connect.mayoclinic.org/comment/1307762/

Discussion: What is the best treatment for carcinoid tumor in mesentery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19, 2025