Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

167 total results

Comments (136)

My situation sounds a little similar in that they marked my tumor from a CT scan...

https://connect.mayoclinic.org/comment/944168/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 8, 2023

Hi jestjohn, I’d be interested to know the results of your Dec. 15, 2023 PET scan....

https://connect.mayoclinic.org/comment/1015601/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2024

Hi, in case it's of interest, the following describes my recent NET experience. Following a blockage,...

https://connect.mayoclinic.org/comment/782928/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 9, 2022

Hi thalverson, On July 1, 2022 I had the surgical removal of a neuroendocrine tumor in...

https://connect.mayoclinic.org/comment/953017/

Discussion: Anyone suffered with diarrhea 3 mos after surgery small intestine NET?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 24, 2023

Hello All in the NETs discussion groups. Here is a learning opportunity for all NETs patients...

https://connect.mayoclinic.org/comment/857594/

Discussion: Learn About NETs and monthly meetings

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2023

@astaingegerdm Thank you! I feel like a cry baby right now. Lol. Here I am, in...

https://connect.mayoclinic.org/comment/676577/

Discussion: What’s next: Seeking advice on how to navigate diagnosis appointments?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2022

Following a very uncomfortable blockage (I had had no carcinoid syndrome), on July 1, 2022 I...

https://connect.mayoclinic.org/comment/874619/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 8, 2023

I was suffering before my surgery with 3 small bowel constrictions due to Nets. I had...

https://connect.mayoclinic.org/comment/1216360/

Discussion: Carotid body tumor encasing completely carotid artery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19 9:56am

PRRT is hung up with the FDA approval process. I can't post messages with links yet,...

https://connect.mayoclinic.org/comment/127206/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 9, 2016

I'm now 2 years post resection of the small intestine due to NETs. I did have...

https://connect.mayoclinic.org/comment/1345232/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: 3 days ago

This is such an awesome subject that is helpful for post diet and foods for digestion...

https://connect.mayoclinic.org/comment/1344939/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: 3 days ago

I just completed my last PRRT (Lutathera)treatment in May, I had a scan before my third...

https://connect.mayoclinic.org/comment/1324144/

Discussion: Advice for Preparations and Expectations on starting PRRT?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 10 9:03am

I was diagnosed with stage 4 advanced NET s primary in the small bowels, and metastasized...

https://connect.mayoclinic.org/comment/1112552/

Discussion: GI Net stage 4 advanced: Is it incurable?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 27, 2024

Low fibre diet was advised due to my small intestine net causing a possible bowel obstruction....

https://connect.mayoclinic.org/comment/1050410/

Discussion: Diet restrictions with Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 14, 2024

Hi @hopeful33250 and thanks for reaching out. I went to the hospital on August 30th with...

https://connect.mayoclinic.org/comment/942618/

Discussion: Octreoscan/Ga-68 DOTATATE PET/CT -- Where to go?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 5, 2023

Hello everyone I am now at home resting. My pain levels have dropped significantly since yesterday....

https://connect.mayoclinic.org/comment/819534/

Discussion: PNET Surgery: My recovery journey

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1, 2023

Wow! Let me saw that I was treated like a rock star at Mayo in Jacksonville....

https://connect.mayoclinic.org/comment/770718/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 8, 2022

I was diagnosed with Carcinoid Cancer with Carcinoid Syndrome in 2003. By that time I was...

https://connect.mayoclinic.org/comment/741205/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 24, 2022

Hi Theresa, Thank you for reaching out. Wow. So much has happened. Dr. Stuckey did my...

https://connect.mayoclinic.org/comment/176720/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 8, 2019

Hi Sylvia, my hubs NETS started with a small bowl obstruction, ended up at the ER...

https://connect.mayoclinic.org/comment/946485/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 12, 2023

Breast Cancer

6766

2 minutes ago

Cancer

8488

36 minutes ago

Cancer: Managing Symptoms

4646

36 minutes ago

Digestive Health

15583

46 minutes ago

Adolescent & Young Adult (AYA) Cancer

722

3 hours ago