Neuroendocrine Tumors (NETs): Discussions | Page 6

I am wondering where your tumors are Liver?

https://connect.mayoclinic.org/comment/1289836/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 25 4:25pm

Hi @mkmn, I'd like to add my welcome and am tagging fellow @pjsheridan2022 @immmm @gulzar as...

https://connect.mayoclinic.org/comment/732809/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 31, 2022

Hi mama neuroendocrine, it sound like you’re on a similar path of hope in managing this...

https://connect.mayoclinic.org/comment/953639/

Discussion: Metastatic NeuroEndocrine Grade 3 - ki 80% -

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 25, 2023

My husband was diagnosed with stage four grade 2 NET in October 2022. He had a...

https://connect.mayoclinic.org/comment/1213981/

Discussion: Anyone had a large NET in the liver? What treatment did you have?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 15 3:27pm

My Journey of what I have done Liver resection Lanreotide Octreotide Liver embolizations both sides Afinitor...

https://connect.mayoclinic.org/comment/1328140/

Discussion: First scan after 3 months of lanreotidec

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16 6:49am

My tumor was in the tail of pancreas, entangled with spleen. With liver mets

https://connect.mayoclinic.org/comment/972425/

Discussion: Anyone had nauseous, gas burping as symptoms for NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 29, 2023

My liver had so many tumors that they were not counted. After 4 treatments of Lutathera,...

https://connect.mayoclinic.org/comment/1193915/

Discussion: I recently learned of histotripsy treatment for metastatic NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 20, 2024

I understand, @amygirl, however, Connect members are not medical professionals, but patients like yourself. The question...

https://connect.mayoclinic.org/comment/1197964/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

Thank you both for your replies. It sounds like those therapies are working well for both...

https://connect.mayoclinic.org/comment/901213/

Discussion: Should I want more treatment after pancreatic nets with lymph nodes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 24, 2023

He has never had symptoms of carcinoid syndrome yet so we are hopeful there are no...

https://connect.mayoclinic.org/comment/137533/

Discussion: My Husband was newly diagnosed with Carcinoid Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2017

@tomrennie How big were your tumors? On liver? TYou

https://connect.mayoclinic.org/comment/1251244/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 5 4:47pm

Carcinoid tumors in the liver. Thanks for the information. It gives more confidence.

https://connect.mayoclinic.org/comment/85531/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 21, 2015

I just finished PRRT for sm. Intestine NET primary w/ liver metastases. I choose 3mo follow-up...

https://connect.mayoclinic.org/comment/1211469/

Discussion: MRI or CatScan as follow up imaging for metastatic liver tumor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 14 3:22pm

Hello @cindypat1 and welcome to the NETs support group on Mayo Connect. We have many members...

https://connect.mayoclinic.org/comment/1203848/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 4 2:36pm

Yeah I had a second opinion at MD Anderson in Houston and they said I wouldn’t...

https://connect.mayoclinic.org/comment/1338817/

Discussion: Liver transplant and Neuroendocrine Carcinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 30 8:07pm

That is what my doc orders for my liver tumors and they show clearly.

https://connect.mayoclinic.org/comment/1311646/

Discussion: Primary Small Bowel NETS, Liver Mets

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 24 7:52am

That is really amazing and promising that it has stayed stable or away from the liver...

https://connect.mayoclinic.org/comment/1342329/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 6 12:26pm

Yes surgery dissection for my liver isn’t an option for me.

https://connect.mayoclinic.org/comment/1285652/

Discussion: NET in jejunum spread to liver: Treatment options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 19 6:33pm

I had a liver biopsy taken from the dominant tumor.

https://connect.mayoclinic.org/comment/1227873/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2 3:51pm

Hi @donnarushing55 He had a distal pancreatectomy in 2008 during which they discovered the many liver...

https://connect.mayoclinic.org/comment/1003991/

Discussion: PNET on tail of pancreas with numerous bilobar hepatic metastases

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 26, 2024

Neuroendocrine Tumors (NETs) Support Group