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Public Support Group 508 total results
Comments (438)
I also have Nets on my Pancreas and only receiving Octreotide injections every two weeks for...
https://connect.mayoclinic.org/comment/1409154/
@winniew 10 cm lung NET, wow. Glad that’s out of there. Sorry about your IPMN. As...
https://connect.mayoclinic.org/comment/1393078/
I had a somewhat similar situation when I was diagnosed with my pancreatic neuroendocrine tumor. In...
https://connect.mayoclinic.org/comment/1351342/
I am hoping someone on this site has a glucagonoma and their experience, please respond. 1...
https://connect.mayoclinic.org/comment/1350572/
Hello, good afternoon. First of all, I'm sorry you're going through this. My wife had a...
https://connect.mayoclinic.org/comment/1349846/
I found out accidently that I to have a NET( 1.5 cm, Grade 1) as well,...
https://connect.mayoclinic.org/comment/1345996/
Update for folks who have been so helpful - doctor appointment hard but useful. Lanreotide alone...
https://connect.mayoclinic.org/comment/1328851/
Hello @perryleeoneal and welcome to the NETs support group on Mayo Connect. I appreciate you sharing...
https://connect.mayoclinic.org/comment/1312862/
Your tracking great with being a strong advocate for your son's health with this diagnosis. Our...
https://connect.mayoclinic.org/comment/1288159/
I have pancreatic NET , grade 2, stage 4 with liver metastases. Had debulking surgery on...
https://connect.mayoclinic.org/comment/1286484/
Hello @llr9f and welcome to the NETs support group on Mayo Connect. I see that many...
https://connect.mayoclinic.org/comment/1286095/
I'm sorry you have to ho through this. My husband was diagnosed with stage 4 pancreatic...
https://connect.mayoclinic.org/comment/1284705/
Thank you all! I've since had an in person oncology / surgical consult, and it was...
https://connect.mayoclinic.org/comment/1277740/
Thanks for your reply and time! I had chronic pancreatitis which cause a mass of "abnormal...
https://connect.mayoclinic.org/comment/1273052/
I was diagnosed in Jan. with pancreatic tumors in the tail of my pancreas that has...
https://connect.mayoclinic.org/comment/1268556/
I’m living with net as well, pancreas which has metastasized to my liver. Discovered about 5years...
https://connect.mayoclinic.org/comment/1252221/
Thank you so much for sharing your story. It sounds like you have gone through a...
https://connect.mayoclinic.org/comment/1247729/
Hi I was sick for a long time until we accidentally discovered it was and net...
https://connect.mayoclinic.org/comment/1234800/
@laree my NET also started in the pancreas. The initial diagnosis is ground shaking. In fact,...
https://connect.mayoclinic.org/comment/1207345/
Dealing with Nets! Wow we are all different I learned as much as I could about...
https://connect.mayoclinic.org/comment/1190887/
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