Neuroendocrine Tumors (NETs) Support Group

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Comments (113)

I am 71 and newly diagnosed with Merkel Cell Carcinoma. I had a fairly large tumor...

https://connect.mayoclinic.org/comment/998755/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Jan 17, 2024

Hi Rose830, I had to look up Merkel Cell Cancinoma as I'm not familiar with it....

https://connect.mayoclinic.org/comment/844303/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 17, 2023

I am also Canadian. Nd we just call them PET SCANS up here we always get...

https://connect.mayoclinic.org/comment/1082732/

Discussion: What NETS show on Gallium scan?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 7, 2024

Hi @lynnemerk1 . You couldn’t just get normal skin cancer like the rest of us? You...

https://connect.mayoclinic.org/comment/1107835/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Jul 18, 2024

Hello @chucksvick79, and welcome to Mayo Clinic Connect. I am happy to hear that your journey...

https://connect.mayoclinic.org/comment/1419262/

Discussion: Merkel cancer update

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 20, 2025

Hello Lynn99, I am Roger McIntire, also a Merkel Cell Carcinoma fighter. I'm 81 and in...

https://connect.mayoclinic.org/comment/998884/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Jan 17, 2024

Hey Lynn, sounds like you are handling the treatments very well and you are correct when...

https://connect.mayoclinic.org/comment/1013030/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Feb 10, 2024

It was an outpatient surgery so hanging out on my easy chair right now… The day...

https://connect.mayoclinic.org/comment/1552173/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: 1 day ago

Hello Lynn99, it is great to hear how you are doing! Most of my radiation side...

https://connect.mayoclinic.org/comment/1109181/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Jul 21, 2024

Thanks for your reply, Teresa @hopeful33250. I contacted NIH a couple years ago about their research...

https://connect.mayoclinic.org/comment/275694/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 8, 2019

My concern for Merkel was justified since it became recurrent in December of 24. It spread...

https://connect.mayoclinic.org/comment/1266569/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Mar 25, 2025

I was dx the end of Dec 1023 and had surg in Jan 2024 and 30...

https://connect.mayoclinic.org/comment/1108984/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Jul 20, 2024

Hello to you! I am sorry to hear about your mom’s diagnosis. I will tell you...

https://connect.mayoclinic.org/comment/808927/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Feb 9, 2023

I just found this group and read the comments. Because this is such a rare cancer,...

https://connect.mayoclinic.org/comment/957831/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Nov 2, 2023

@collenyoung, Thank you for your empathy and helpful advice. My insurance will not let me go...

https://connect.mayoclinic.org/comment/791307/

Discussion: Merkel cell-radiation effective on chest-new 2 cm spot on liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 2, 2023

Howdy Y'all! Sam Knapp here. I am a nearly 63 year old Merkel Cell Carcinoma Survivor...

https://connect.mayoclinic.org/comment/1494546/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Jan 30 9:12pm

I have responded well to the Keytruda treatments. I go every three weeks for the infusion...

https://connect.mayoclinic.org/comment/1070795/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: May 19, 2024

Hi, my name is Sharm. I had a cancer 21 yrs ago it was CLL. I...

https://connect.mayoclinic.org/comment/1259495/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Mar 16, 2025

Hello Lynn99, here is hoping you are continuing to improve with the Merkel situation and its...

https://connect.mayoclinic.org/comment/1063899/

Discussion: Merkel cancer update

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 7, 2024

Hello Lynn. Sounds like you are hanging in there and still keeping a positive attitude. Radiation...

https://connect.mayoclinic.org/comment/1054172/

Discussion: Merkel cancer update

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20, 2024

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