Neuroendocrine Tumors (NETs) Support Group

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Comments (106)

Hey Lynn, sounds like you are handling the treatments very well and you are correct when...

https://connect.mayoclinic.org/comment/1013030/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Feb 10, 2024

Hello Lynn99, it is great to hear how you are doing! Most of my radiation side...

https://connect.mayoclinic.org/comment/1109181/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Jul 21, 2024

Thanks for your reply, Teresa @hopeful33250. I contacted NIH a couple years ago about their research...

https://connect.mayoclinic.org/comment/275694/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 8, 2019

My concern for Merkel was justified since it became recurrent in December of 24. It spread...

https://connect.mayoclinic.org/comment/1266569/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Mar 25 12:41pm

I was dx the end of Dec 1023 and had surg in Jan 2024 and 30...

https://connect.mayoclinic.org/comment/1108984/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Jul 20, 2024

@collenyoung, Thank you for your empathy and helpful advice. My insurance will not let me go...

https://connect.mayoclinic.org/comment/791307/

Discussion: Merkel cell-radiation effective on chest-new 2 cm spot on liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 2, 2023

Hello to you! I am sorry to hear about your mom’s diagnosis. I will tell you...

https://connect.mayoclinic.org/comment/808927/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Feb 9, 2023

I just found this group and read the comments. Because this is such a rare cancer,...

https://connect.mayoclinic.org/comment/957831/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Nov 2, 2023

I have responded well to the Keytruda treatments. I go every three weeks for the infusion...

https://connect.mayoclinic.org/comment/1070795/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: May 19, 2024

Hi, my name is Sharm. I had a cancer 21 yrs ago it was CLL. I...

https://connect.mayoclinic.org/comment/1259495/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Mar 16 12:04pm

Hello Lynn99, here is hoping you are continuing to improve with the Merkel situation and its...

https://connect.mayoclinic.org/comment/1063899/

Discussion: Merkel cancer update

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 7, 2024

Hello Lynn. Sounds like you are hanging in there and still keeping a positive attitude. Radiation...

https://connect.mayoclinic.org/comment/1054172/

Discussion: Merkel cancer update

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20, 2024

Thank you for sharing your story. Dorky or not, you’re being very cautious about preventing skin...

https://connect.mayoclinic.org/comment/1074364/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: May 25, 2024

My biopsy report indicates it’s basal cell carcinoma, thankfully not Merkel Cell. I’ve been searching for...

https://connect.mayoclinic.org/comment/1076524/

Discussion: What’s the best care option for live alone senior during radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28, 2024

I was diagnosed with stage 4 Merkel cell carcinoma in Jan 2022 when I developed a...

https://connect.mayoclinic.org/comment/966112/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Nov 16, 2023

Hello Theresa, so sorry to hear you are going through this cancer!! I am wondering if...

https://connect.mayoclinic.org/comment/1110751/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Jul 23, 2024

Hi My husband was diangnosed with Stage 3B merkel cell on his nose ....in summer 2021...

https://connect.mayoclinic.org/comment/1109496/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Jul 21, 2024

Great news Roger. Glad your PET scan was clean. I’m slowing healing from the radiation treatments....

https://connect.mayoclinic.org/comment/1048789/

Discussion: Merkel cancer update

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 11, 2024

I was diagnosed with merkel cell when a spot came up on my knee. It looked...

https://connect.mayoclinic.org/comment/939698/

Discussion: Merkel cell-radiation effective on chest-new 2 cm spot on liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 1, 2023

Hi Teresa My sister went to a hospital near her in Delaware. Not sure which one...

https://connect.mayoclinic.org/comment/163586/

Discussion: NIH clinical study looking for the gene causing carcinoid cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 12, 2017

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