Neuroendocrine Tumors (NETs) Support Group

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Comments (96)

Hello to you! I am sorry to hear about your mom’s diagnosis. I will tell you...

https://connect.mayoclinic.org/comment/808927/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 9, 2023

I just found this group and read the comments. Because this is such a rare cancer,...

https://connect.mayoclinic.org/comment/957831/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 2, 2023

Thank you for sharing your story. Dorky or not, you’re being very cautious about preventing skin...

https://connect.mayoclinic.org/comment/1074364/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25 10:38am

Hello Lynn. Sounds like you are hanging in there and still keeping a positive attitude. Radiation...

https://connect.mayoclinic.org/comment/1054172/

Discussion: Merkel cancer update

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20 9:21am

I have responded well to the Keytruda treatments. I go every three weeks for the infusion...

https://connect.mayoclinic.org/comment/1070795/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19 9:29am

My biopsy report indicates it’s basal cell carcinoma, thankfully not Merkel Cell. I’ve been searching for...

https://connect.mayoclinic.org/comment/1076524/

Discussion: What’s the best care option for live alone senior during radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28 1:54pm

I was diagnosed with stage 4 Merkel cell carcinoma in Jan 2022 when I developed a...

https://connect.mayoclinic.org/comment/966112/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 16, 2023

I was diagnosed with merkel cell when a spot came up on my knee. It looked...

https://connect.mayoclinic.org/comment/939698/

Discussion: Merkel cell-radiation effective on chest-new 2 cm spot on liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 1, 2023

Hello Theresa, so sorry to hear you are going through this cancer!! I am wondering if...

https://connect.mayoclinic.org/comment/1110751/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 23 10:34pm

Hi My husband was diangnosed with Stage 3B merkel cell on his nose ....in summer 2021...

https://connect.mayoclinic.org/comment/1109496/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 21 5:14pm

Great news Roger. Glad your PET scan was clean. I’m slowing healing from the radiation treatments....

https://connect.mayoclinic.org/comment/1048789/

Discussion: Merkel cancer update

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 11 7:44am

Hi, I was first diagnosed with MCC 2 years ago with a tumor in my right...

https://connect.mayoclinic.org/comment/996157/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 12 1:04pm

Hi Teresa My sister went to a hospital near her in Delaware. Not sure which one...

https://connect.mayoclinic.org/comment/163586/

Discussion: NIH clinical study looking for the gene causing carcinoid cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 12, 2017

I can't offer much on therapies after surgery to remove the cancer as my treatment has...

https://connect.mayoclinic.org/comment/957875/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 2, 2023

Thanks for your story! I had a biopsy done on a small bump on my nose...

https://connect.mayoclinic.org/comment/1074587/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25 5:44pm

Hi - sorry to hear that. I, too am Stage 3 Merkle cell carcinoma, diagnosed in...

https://connect.mayoclinic.org/comment/943800/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 7, 2023

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