Neuroendocrine Tumors (NETs) Support Group

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Comments (2,049)

My journey since diagnosis of pets, metastasis to liver, Jan.2025 has been monthly Lanreotide, now every...

https://connect.mayoclinic.org/comment/1329038/

Discussion: First scan after 3 months of lanreotidec

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17 10:13am

Everybody responds to treatments differently. My husband had a completely different result after his y90 which...

https://connect.mayoclinic.org/comment/1360675/

Discussion: Anyone on cabozantinib after Y90

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 31 11:02am

Did you have a biopsy in liver tumors?

https://connect.mayoclinic.org/comment/1111630/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25, 2024

@pete1962, I'd like to add to the helpful post from @lu7. (I wish you both successful...

https://connect.mayoclinic.org/comment/817128/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 25, 2023

@pete1962 Sorry I didn’t see your post until just recently. My wife had primary NET on...

https://connect.mayoclinic.org/comment/832543/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 26, 2023

I have a 4.5 cm tumor in the head of the pancreas and an atrophied tail...

https://connect.mayoclinic.org/comment/1336098/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 27 6:43am

neuroendocrine tumor.carcinoid cancer. small intestion and liver

https://connect.mayoclinic.org/comment/742273/

Discussion: What helps with gas and pain after surgery?

Support Group: Cancer: Managing Symptoms

Posted: Aug 27, 2022

My brother had this as well as liver tumor removal (had metastasis to liver). He was...

https://connect.mayoclinic.org/comment/878754/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 15, 2023

Hello All I too have Neuroendocrine carcinoma that started in my small intestine and metastatic to...

https://connect.mayoclinic.org/comment/797748/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16, 2023

I was recently diagnosed with NETs in my lungs, small ones. I had the all mighty...

https://connect.mayoclinic.org/comment/1054468/

Discussion: NET lung with Liver Metastasis (stage 4)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20, 2024

https://connect.mayoclinic.org/comment/845977/

Discussion: New diagnosis of NET: What should I know and do to plan?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 19, 2023

Sorry for the delay in responding but I had hernia repair surgery and still have nausea,...

https://connect.mayoclinic.org/comment/705196/

Discussion: Any NET patients from NYC

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2022

Hey all. My husband was diagnosed with NET that metastasized to liver 5 years ago. Since...

https://connect.mayoclinic.org/comment/1356472/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25 8:40pm

For those of you with liver metastasis, what was your primary NET? How were the liver...

https://connect.mayoclinic.org/comment/828147/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18, 2023

Hi Kevin, finally I come across someone with functional gastrinoma that I can consult or share....

https://connect.mayoclinic.org/comment/1283715/

Discussion: New To NETS - Stage 4 / Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 17 5:05am

Hello. I wanted to add some information about the testosterone issues you mentioned. My husband was...

https://connect.mayoclinic.org/comment/1385205/

Discussion: Has anyone had NET show up on CT scan, I had CT scan in 23

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 2 3:49pm

General question...have NETS. I'm both lungs. The GA-68 Pet/scan. Reference my liver SUV. # was very...

https://connect.mayoclinic.org/comment/1054473/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20, 2024

I had the same and it spread to my lymph nodes and liver

https://connect.mayoclinic.org/comment/1216778/

Discussion: PNET removed 2 years ago: Can it come back at another site?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19 4:27pm

Hi, I am going thru my second surgery for Bland Liver Embolization tomorrow (they do one...

https://connect.mayoclinic.org/comment/768039/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 1, 2022

I just realized that I didn't respond to you but some days I am fatigue and...

https://connect.mayoclinic.org/comment/713907/

Discussion: Any NET patients from NYC

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 3, 2022

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