Neuroendocrine Tumors (NETs) Support Group

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I was in for a healthy heart check and spots were seen my liver. I promptly...

https://connect.mayoclinic.org/comment/812546/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16, 2023

@carcinoid23462 Hello Sandy I appreciate you sharing your treatments for carcinoids. You mentioned that the doctor...

https://connect.mayoclinic.org/comment/746356/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 6, 2022

Thank you,,,, l called Dana Farber, Boston for second opinion. Will see May 10th. I do...

https://connect.mayoclinic.org/comment/1056725/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2024

I was diagnosed with stage 4 pancreatic NET with liver metastasis in 8/22. I learned what...

https://connect.mayoclinic.org/comment/995254/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10, 2024

I was tested for histotripsy by Dr Silk at NYU Langone for my 3mm liver tumor...

https://connect.mayoclinic.org/comment/1194891/

Discussion: I recently learned of histotripsy treatment for metastatic NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 21, 2024

Thank you Your information was very interesting I am just starting my road to wherever I...

https://connect.mayoclinic.org/comment/718692/

Discussion: Newly diagnosed with NET in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18, 2022

You are welcome. My blood work up, which they do every month, shows liver and kidney...

https://connect.mayoclinic.org/comment/1218718/

Discussion: Clay colored bowels & diarrhea side effects with Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22, 2025

Thanks. I am searching for options for me. Recent MRI detected a tumor in the liver...

https://connect.mayoclinic.org/comment/1251741/

Discussion: Has anyone out there tried Histotripsy for tumors in the liver?

Support Group: Liver Cancer

Posted: Mar 6, 2025

Hi I am so sorry to hear of your situation I had primary NET liver cancer...

https://connect.mayoclinic.org/comment/776351/

Discussion: Does sandostatin work?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 22, 2022

@timaudette I was diagnosed in Jan.2025 with a tumor on the distal end of my pancreas...

https://connect.mayoclinic.org/comment/1551095/

Discussion: Severe itching from liver metastasis (NETs)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 15 10:09am

Thanks carcinoid tumors/liver.

https://connect.mayoclinic.org/comment/85537/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 24, 2015

I've only just been diagnosed with two neuroendocrine tumors in the liver. I'm very interested in...

https://connect.mayoclinic.org/comment/795642/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 12, 2023

@siluka You are right to recommend a second opinion. My liver NETS are very tiny, but...

https://connect.mayoclinic.org/comment/1435694/

Discussion: S4, G2 NETS in mesentery. Declined Exploratory Surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2025

I was diagnosed March 2022 stage 4 grade 2 18%, primary tumour on the tail of...

https://connect.mayoclinic.org/comment/1049788/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12, 2024

Related discussions on Mayo Clinic Connect: - Anyone heard about Histotripsy for liver NETs? https://connect.mayoclinic.org/discussion/histotripsy/ -...

https://connect.mayoclinic.org/comment/1198291/

Discussion: I recently learned of histotripsy treatment for metastatic NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

I have neuroendocrine primary in midgut and mets to liver about 20 small tumors, the primary...

https://connect.mayoclinic.org/comment/90144/

Discussion: I have recently been diagnosed with my third neuroendocrine tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 31, 2016

@mamajeanne I have a primary pancreatic NET with liver metastasis. Other than the abdominal pain, did...

https://connect.mayoclinic.org/comment/1569614/

Discussion: New to the group and cancer journey: Liver NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 8 8:51am

MRI for my liver mets

https://connect.mayoclinic.org/comment/1207367/

Discussion: MRI or CatScan as follow up imaging for metastatic liver tumor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9, 2025

Could it be they want to get it removed before it spreads to the liver or...

https://connect.mayoclinic.org/comment/1320835/

Discussion: PNET in Tail of Pancreas, Portal and Splenic Veins

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 5, 2025

Did the Radiotherapy reduce the liver Mets?

https://connect.mayoclinic.org/comment/1352422/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2025

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