Neuroendocrine Tumors (NETs): Discussions | Page 5

I have pancreatic neuroendocrine tumor with liver metastasis. It is grade 1. I am scheduled for...

https://connect.mayoclinic.org/comment/992109/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 5 6:11pm

My husband had a 50% tumor burden in his liver. He had radioembolization done in 2010....

https://connect.mayoclinic.org/comment/1174884/

Discussion: Radio Embolization Is My Next Step

Support Group: Neuroendocrine Tumors (NETs)

Posted: 12 hours ago

That report my say metastatic to liver because I've read that neuroendocrine doesn't typically originate in...

https://connect.mayoclinic.org/comment/1158066/

Discussion: Dotatate lights only in liver, but report says metastatic to liver?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 16 1:01pm

Caitrina, I am glad to see your comments after the liver debunking. It is helpful to...

https://connect.mayoclinic.org/comment/780435/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 3, 2022

If the tumors are confined to the liver only, has your doctor suggested a liver directed...

https://connect.mayoclinic.org/comment/1047345/

Discussion: Spreading NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 8 10:13am

Thanks for your comment. I have since learned that non functioning (no symptom) tumors do not...

https://connect.mayoclinic.org/comment/1166857/

Discussion: Dotatate lights only in liver, but report says metastatic to liver?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 2 4:39pm

I have pNET grade 2 stage 4 ( due to metastases in liver). I had distal...

https://connect.mayoclinic.org/comment/881155/

Discussion: My Sister and Best Friend

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2023

Hi, I went for whipple in 2020 as found a PNET Gastrinoma Grade1 Functional. In July...

https://connect.mayoclinic.org/comment/1162931/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 26 9:47am

We have already had the primary removed in March 23, along with gall bladder, spleen, and...

https://connect.mayoclinic.org/comment/952558/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2023

My Husband was diagnosed with GI tract stage 4 Neuroendocrine carcinoid that spread to liver, lymph...

https://connect.mayoclinic.org/comment/1048688/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 10 10:27pm

Sorry I have been diagnosed with metastasized liver NETs don’t know where the primary is as...

https://connect.mayoclinic.org/comment/727433/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 16, 2022

Hi Billyfeet, I was diagnosed in 2012 with a NET on the head of the pancreas...

https://connect.mayoclinic.org/comment/842404/

Discussion: Has anyone chosen the Watch and Wait and regretted that choice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12, 2023

Thank you I have an appointment today with my liver surgeon Hopefully I will know more

https://connect.mayoclinic.org/comment/934187/

Discussion: Bland Liver Embolization complication

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 22, 2023

Thank you for your encouragement. The exhaustion comes & goes. The primary is a carcinoid, very...

https://connect.mayoclinic.org/comment/977617/

Discussion: After liver embolization: Looking for the best diet + food suggestions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 9, 2023

Hello from Indiana. I was diagnosed in August with a NET in my intestine. Pet scan...

https://connect.mayoclinic.org/comment/763826/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 21, 2022

Hi Neuroendocrine Group, I am Neuroendocrine Breast Cancer (rare) with mets in liver and bones. It...

https://connect.mayoclinic.org/comment/766898/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 29, 2022

Hi Joy, each case of NET is different. I can share our case to give you...

https://connect.mayoclinic.org/comment/952987/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 24, 2023

Hello! I have similar diagnosis - pNET and liver metastases. Surgery for the pNET and debulking...

https://connect.mayoclinic.org/comment/1076200/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28 8:12am

Hello @dbamos1945, I understand that you are looking to connect with others who have had NET...

https://connect.mayoclinic.org/comment/775970/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 21, 2022

He’s done blood work and says it’s okay even though liver enzymes are high and WBC...

https://connect.mayoclinic.org/comment/728985/

Discussion: PRRT for NETs: Questioning whether I should continue or not

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 21, 2022

Neuroendocrine Tumors (NETs) Support Group