Neuroendocrine Tumors (NETs) Support Group

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Comments (260)

Sorry to hear about your NETS diagnosis. Check out LACNETS.org and you will find so much...

https://connect.mayoclinic.org/comment/842248/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12, 2023

Hi @dak10 and @mimmy. Thank you for sharing your lung NETs info. I also have typical...

https://connect.mayoclinic.org/comment/835869/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 1, 2023

I am new to this forum. Have 2 carcinoid tumors in left lung that are inoperable....

https://connect.mayoclinic.org/comment/831583/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

Hello @paula7 and welcome to Mayo Clinic Connect. Most folks with a diagnosis of neuroendocrine (NET)...

https://connect.mayoclinic.org/comment/828882/

Discussion: Anyone else have neuroendocrine cervical cancer?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20, 2023

Hello @dak10, I so appreciate hearing from you again with some more information on your journey...

https://connect.mayoclinic.org/comment/827367/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2023

dpepsi247 | @dpepsi247 | 1 minute ago I am still relatively new to this whole journey....

https://connect.mayoclinic.org/comment/816818/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 24, 2023

size doesn't really matter, it depends more on the type of cancer in the lung. They...

https://connect.mayoclinic.org/comment/815650/

Discussion: What tumor size is typical for removing part of the lung?

Support Group: Lung Cancer

Posted: Feb 22, 2023

Hi @andy2020 You have really had a difficult time getting a diagnosis. I can understand how...

https://connect.mayoclinic.org/comment/810693/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2023

Hello @paulaelliott007 and welcome to Mayo Connect. This is unusual to hear of sisters both having...

https://connect.mayoclinic.org/comment/801293/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2023

Hi @kissoon22, welcome. This must all be so shocking and scary as you learn about your...

https://connect.mayoclinic.org/comment/790563/

Discussion: Diagnosed with carcinoid tumor in the colon: Is this cancer?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 30, 2022

Hello! Very naive here about where I have been and how concerned I should be. Maybe...

https://connect.mayoclinic.org/comment/758149/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 6, 2022

Hello @tatteesmom3 and welcome to Mayo Clinic Connect. I can certainly understand that you would want...

https://connect.mayoclinic.org/comment/667143/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 2, 2022

AMD, As you like know, diffuse idiopathic pulmonary neuroendocrine cell hyperplasia (DIPNECH) is an extremely rare...

https://connect.mayoclinic.org/comment/661597/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 11, 2021

Hello @amd12, I'd like to join Colleen, @colleenyoung, in welcoming you to the NETs group at...

https://connect.mayoclinic.org/comment/657390/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 25, 2021

Thanks Teresa for the prompt answer , I saw the oncologist on the 18th of June...

https://connect.mayoclinic.org/comment/134275/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 25, 2018

Teresa and @carcinoid, Dr Anthony told me the 24-hr urine test was not helpful for rectal...

https://connect.mayoclinic.org/comment/184538/

Discussion: Carcinoid Cancer and working

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 20, 2018

Hi @dzerfas, welcome to Connect. There are a number of people talking about carcinoid tumors in...

https://connect.mayoclinic.org/comment/134262/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 17, 2017

@tomrennie so you don't have lung carcinoids

https://connect.mayoclinic.org/comment/1454578/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 6, 2025

@ggiinnaa I've asked my lung nurse can typical carcinoid turn atypical she said no she said...

https://connect.mayoclinic.org/comment/1440975/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 17, 2025

@californiazebra @nannybb @jessie1990 I just got off a Mayo NETs support group call. A lady was...

https://connect.mayoclinic.org/comment/1432500/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 6, 2025

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