Neuroendocrine Tumors (NETs) Support Group

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Comments (269)

Last week was diagnosed with Neuro endocrine tumor "nodules.". It is referred as! Biopsy of carcinoid,...

https://connect.mayoclinic.org/comment/1021964/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 24, 2024

At 67 I was given my diagnosis of stage 3 lung Nets that has metastasized to...

https://connect.mayoclinic.org/comment/1019087/

Discussion: I have 3 nueroendocrine tumors in my left lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 20, 2024

@mlbschuler I am so excited to hear you are seeing Robert Ramirez! He seems the most...

https://connect.mayoclinic.org/comment/1012065/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8, 2024

Hello @ocean3131 and welcome to the NETs support group on Mayo Connect. I'm sorry to hear...

https://connect.mayoclinic.org/comment/987604/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 28, 2023

mir123 I was advised by thesecondopinion.org to be treated for my NET of the breast with...

https://connect.mayoclinic.org/comment/945761/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 11, 2023

Hello @kdgranger and welcome to the NETs support group on Mayo Connect. I am glad that...

https://connect.mayoclinic.org/comment/945546/

Discussion: Type 1 Neuroendocrine Tumor with no risk: What should I ask doctor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 10, 2023

Yes, that was what was recommended. I consulted a surgeon and he also recommended radiation as...

https://connect.mayoclinic.org/comment/943959/

Discussion: Atypical Lung NET treated with radiation: What was your outcome?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 8, 2023

I have lung nets also. Had sbrt radiation for 2 of them and started sandostatin injections...

https://connect.mayoclinic.org/comment/939674/

Discussion: Atypical Lung NET treated with radiation: What was your outcome?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 1, 2023

Yes, I mean Lung Atypical NET

https://connect.mayoclinic.org/comment/938969/

Discussion: Atypical Lung NET treated with radiation: What was your outcome?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 29, 2023

Good morning The surgeon has very straightforward and honest. He said that surgery is the best...

https://connect.mayoclinic.org/comment/913416/

Discussion: How do I know somatostatin is in my system?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 15, 2023

@gmapam Your NETs oncology team should be able to tell you. You need to have somatostatin...

https://connect.mayoclinic.org/comment/912394/

Discussion: How do I know somatostatin is in my system?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 13, 2023

Hi @josey1 I responded to your other post as I have DIPNECH, lung NETs and breast...

https://connect.mayoclinic.org/comment/906759/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 3, 2023

Hi @chana Sorry to hear about your new diagnosis. I see you are seeking treatment in...

https://connect.mayoclinic.org/comment/886357/

Discussion: Feeling discouraged and too many specialists

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 28, 2023

Hi @gmapam My lung NETS team happens to be at UCLA. I also had my NETSPOT...

https://connect.mayoclinic.org/comment/884379/

Discussion: Recently diagnosed with a NET in my middle lobe of my right lung.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 24, 2023

I hope that you had diagnosed i had the same symptoms of cushing with normal pitutary...

https://connect.mayoclinic.org/comment/884022/

Discussion: Feeling discouraged and too many specialists

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 24, 2023

Hello @merenyc and welcome to the NET support group on Mayo Connect. There are other members...

https://connect.mayoclinic.org/comment/881988/

Discussion: Confused about diagnosis: Carcinoid tumor in rectal area

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 20, 2023

@rogo @triveraderubio @bcraft @bluedane @amd12 @tatteesmom3 @pattirushing @hopeful33250 @larenn @colleenyoung @kristen3 This is an exciting study...

https://connect.mayoclinic.org/comment/871424/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 3, 2023

Hi @peggymariejackson as I mentioned in another one of your posts, I have lung NETs --...

https://connect.mayoclinic.org/comment/861009/

Discussion: Dying from car accident can cause death more so this cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 17, 2023

HI @lupitaromero Hope all is well with peace in your life. I was diagnosed with large...

https://connect.mayoclinic.org/comment/854646/

Discussion: Alguien ha tenido metastasis en ganglios? Metastases in lymph nodes

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2023

I have lung NETs with tumor on my left lobe and mediastinum. With this I have...

https://connect.mayoclinic.org/comment/845043/

Discussion: Net unknown cause of breathing problems

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 18, 2023

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