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Public Support Group 255 total results
Comments (240)
I would strongly request a PET. I've had one recently to see if my dipnech tumours...
https://connect.mayoclinic.org/comment/1142721/
Thank you all. This is really helpful. I should’ve been clear that I don’t have NETs....
https://connect.mayoclinic.org/comment/1532445/
Hello @kmcbride77, and welcome to the NETs support group on Mayo Connect. It looks like you...
https://connect.mayoclinic.org/comment/1450859/
I was diagnosed with DIPNECH in June of last year. I have surgery to remove the...
https://connect.mayoclinic.org/comment/1244389/
@colleenyoung Hi Colleen, I'm so glad you posted this article. Believe it or not, it was...
https://connect.mayoclinic.org/comment/1055394/
Hi @queengemini16 What is your surgeon’s and oncologist’s recommended course of action? Are you planning to...
https://connect.mayoclinic.org/comment/1006882/
I coughed constantly for 30 years due to lung NETs and DIPNECH but octreotide injections for...
https://connect.mayoclinic.org/comment/1067737/
OMG. Yes yes yes so much the same. I was told by my pulmonary doctor that...
https://connect.mayoclinic.org/comment/1329979/
Tom, that’s frustrating about your incidental findings too. I hope both conditions were successfully treated. I...
https://connect.mayoclinic.org/comment/958681/
Hi @californiazebra This tumor that was ablated was the only one that the dotatate pet ‘lit’...
https://connect.mayoclinic.org/comment/1071219/
Hi, I'm 67 years old. Have been mis-diagnosed for over 5 years. 2023 Dr. finally walks...
https://connect.mayoclinic.org/comment/1054374/
I had a large one in my left lower lobe. Almost 2cm and they weren't sure...
https://connect.mayoclinic.org/comment/1318419/
@meryls12, you may wish to consult with the leading NETs team at Mayo Clinic in Jacksonville...
https://connect.mayoclinic.org/comment/968224/
Typical carcinoids and DIPNECH are not associated with smoking. The majority of cases are non-smokers and...
https://connect.mayoclinic.org/comment/1288434/
Hi @donnapeck51 I’m sorry to hear about your Merkel cell carcinoma. I’m not a doctor but...
https://connect.mayoclinic.org/comment/1172492/
Hi @dipnech67 I would be happy to speak with you. I just sent you a private...
https://connect.mayoclinic.org/comment/1055386/
Are you taking a treatment? So interesting, these various symptoms, like GERD! I had it for...
https://connect.mayoclinic.org/comment/1330063/
@mieczyslaw If you have a lot of tumorlets in both lungs it sounds suspect for DIPNECH....
https://connect.mayoclinic.org/comment/962492/
@jhhaas Glad the surgery is behind you. Yes, you should have a NETs multidisciplinary team at...
https://connect.mayoclinic.org/comment/976633/
I have also been diagnosed with DIPNECH and have probably had for 20 years. I have...
https://connect.mayoclinic.org/comment/1172007/
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