Neuroendocrine Tumors (NETs): Discussions | Page 48

Support Group: Liver Cancer

Posted: Nov 13, 2024

I never got the second vaccines. I’m doing ok. Lately being getting a lot of abdominal...

https://connect.mayoclinic.org/comment/951591/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 21, 2023

Hi! Thank you for sending the article, this is the one I had read and found...

https://connect.mayoclinic.org/comment/948561/

Discussion: Anyone heard about Histotripsy for liver NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 16, 2023

My dad has high grade NEC primary pancreas with liver mets. Showed progression on carbo/etopo and...

https://connect.mayoclinic.org/comment/866565/

Discussion: Immunotherapy (Ipilimumab & Nivolumab) for NETs: Any experiences?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2023

I had my first surgery 8 months ago. My Oncologist was busy so I spoke to...

https://connect.mayoclinic.org/comment/787564/

Discussion: Carcinoid tumor of the appendix.PET scan results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 22, 2022

My dear friend has had the 4 PRRT. She was ready to quit after 3 because...

https://connect.mayoclinic.org/comment/732819/

Discussion: PRRT for NETs: Questioning whether I should continue or not

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 31, 2022

@spendrous: I have NET Specialist Oncoligist at City of Hope treating my sm. intestine primary with...

https://connect.mayoclinic.org/comment/1207539/

Discussion: MRI or CatScan as follow up imaging for metastatic liver tumor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9 10:25am

Good morning, the small intestines was the primary source of my NET’s before metastasizing to my...

https://connect.mayoclinic.org/comment/1204419/

Discussion: Can anyone share information about NET in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 5 9:59am

Dear stevestenberg31, I have NET in pancreas( debulked) with liver metastases. Had 2 Lan injections with...

https://connect.mayoclinic.org/comment/846399/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20, 2023

My husband did great with the PRRT 4 treatments. He never had any scans orMRI to...

https://connect.mayoclinic.org/comment/1048898/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 11, 2024

Are you having the surgery at the same hospital that misdiagnosed? Surgery is always the best...

https://connect.mayoclinic.org/comment/932587/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2023

Wow, hang in there. My situation was that i had a blockage caused by the SINET....

https://connect.mayoclinic.org/comment/919988/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 27, 2023

Hello, My husband has NETS “insulinoma” also very rare. Pancreas metastasized to liver. He is currently...

https://connect.mayoclinic.org/comment/908363/

Discussion: Looking for information on CAPTEM treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 6, 2023

@gneiss50 I am so pleased that you have had the additional tests as a follow up....

https://connect.mayoclinic.org/comment/809236/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10, 2023

I was recently diagnosed (this week) with a Neuroendocrine Tumor in my lower lung and one...

https://connect.mayoclinic.org/comment/806203/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 4, 2023

Started with two rounds of CAPTEM. Didn’t work at all. Then did 10 rounds of FOLFIRINOX,...

https://connect.mayoclinic.org/comment/796241/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 13, 2023

Hi I agree with this "wait" approach as well. My husband was diagnosed last year with...

https://connect.mayoclinic.org/comment/1350282/

Discussion: What's next after SiNETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17 11:18am

Have had PRRT as well as distal pancreatectomy, but my tumors were quite visible. I can...

https://connect.mayoclinic.org/comment/1364303/

Discussion: Interested in your experience with treatments of PRRT vs surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 5 1:16pm

Mine was found via colonoscopy. I have had stomach issues my whole life that were undiagnosed....

https://connect.mayoclinic.org/comment/1181865/

Discussion: NET of the Rectum: Anyone at Mayo Jacksonville? What can I expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 29, 2024

@Hollywood81: I am anxiously following your case because I am now receiving PRRT Lutathera treatment for...

https://connect.mayoclinic.org/comment/1151563/

Discussion: Straight to the liver: Anyone have NETs originating in strange areas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 4, 2024

Neuroendocrine Tumors (NETs) Support Group