Neuroendocrine Tumors (NETs) Support Group

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Comments (2,368)

Hello @grandfather2, and welcome to the NETs support group on Mayo Clinic Connect. It sounds like...

https://connect.mayoclinic.org/comment/1425253/

Discussion: NETs with Liver metastasis: starting lanreotide injections

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 28, 2025

Good morning, My NET is Pancreas to Liver also to numerous to operate, some were over...

https://connect.mayoclinic.org/comment/913398/

Discussion: Anyone with an insulinoma have only therapies instead of surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 15, 2023

My husband has neuroendocrine pancreatic cancer stage four in liver as well. He's been having trouble...

https://connect.mayoclinic.org/comment/796605/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 14, 2023

Hi Lenora, my husband has been diagnosed with Neuroendocrine cancer and we knew nothing about it?...

https://connect.mayoclinic.org/comment/669455/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9, 2022

Yes!!! My last PET scan (a few weeks ago) showed ‘no new spread or tumor growth’...

https://connect.mayoclinic.org/comment/1353068/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 21, 2025

Wow. You have been through quite alot but clearly are tenacious which is a good thing...

https://connect.mayoclinic.org/comment/1332712/

Discussion: So many questions about wjether or not I have Carcinoid Cancer/NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 22, 2025

So it seems like you had NETS probably back in 2020 when you went to your...

https://connect.mayoclinic.org/comment/1238731/

Discussion: Diagnosed with NET si-NET Stage 1 Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16, 2025

@milagro45pr - I was diagnosed with huge PNET. Had surgery on Feb.1. Ended up with removing...

https://connect.mayoclinic.org/comment/810255/

Discussion: NET in body of pancreas: What are my treatment options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 12, 2023

Hi, Bridget. I'm fairly new to this support group too. Just wanted to let you know...

https://connect.mayoclinic.org/comment/800436/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22, 2023

Hello @carcinoid23462, It was good to read about your history with liver surgery and treatments. It...

https://connect.mayoclinic.org/comment/790005/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 29, 2022

I neglected to include how my doctor treated my carcinoid cancer at the onset, after removing...

https://connect.mayoclinic.org/comment/762518/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 18, 2022

Hi Adding a five day SBRT radiation starting next week to hit one lesion in my...

https://connect.mayoclinic.org/comment/1025698/

Discussion: My husband has had his second PRRT and is doing well!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1, 2024

@nannybb I've had a pet/ct scan I've had 2 bronchoscopys 2 biopsys liver mri and also...

https://connect.mayoclinic.org/comment/1432326/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 6, 2025

Hello @pnelson5220 and welcome! I appreciate you sharing about your NETs journey. The discovery and treatment...

https://connect.mayoclinic.org/comment/1393556/

Discussion: Has anyone had NET show up on CT scan, I had CT scan in 23

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2025

Oops maybe I’ve got that wrong. He started chemo in 2018 then had to go to...

https://connect.mayoclinic.org/comment/981820/

Discussion: Stage four high-grade neuroendocrine carcinoma

Support Group: Lung Cancer

Posted: Dec 16, 2023

Yah, I started Somatulin Depot Feb 15, 2023. We will monitor the liver NET via MRI...

https://connect.mayoclinic.org/comment/952826/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2023

I get tested for Chromogranin every 4 weeks. My last result was around 1000. It had...

https://connect.mayoclinic.org/comment/793083/

Discussion: Neuroendocrine tumor: What tests are used for diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2023

I was diagnosed with NET’s starting in small bowel and metastasized to liver, I’ve been on...

https://connect.mayoclinic.org/comment/1283550/

Discussion: NET in jejunum spread to liver: Treatment options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 16, 2025

I too have small cell cancer Mets 4 .to lungs and liver. 2017 Sept. Started out...

https://connect.mayoclinic.org/comment/232890/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Mar 21, 2019

So sorry to hear about your tumors. Can they surgically take them out to buy more...

https://connect.mayoclinic.org/comment/1511570/

Discussion: How do you mentally handle reoccurrence?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 21 8:38pm

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