Neuroendocrine Tumors (NETs): Discussions | Page 48

It took me years to come across my own course of action. And my doctors were...

https://connect.mayoclinic.org/comment/1011819/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8 9:47am

My condition is similar stage 4 due to it metastasizing to the liver, origin is the...

https://connect.mayoclinic.org/comment/1106025/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15 11:40am

Hi vtn. I agree with what has been previously said. You have some people in here...

https://connect.mayoclinic.org/comment/859271/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13, 2023

Thanks for the reminder to fill you in. I did ask my IR who did my...

https://connect.mayoclinic.org/comment/957412/

Discussion: Anyone heard about Histotripsy for liver NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 1, 2023

Hi, I found it during colonoscopy. It showed up as 2cm polyp so close to my...

https://connect.mayoclinic.org/comment/1054489/

Discussion: Large Appendiceal NET, well-differentiated

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20 11:13pm

Just thought I would contact this group to say Hi. I was diagnosed with NETS about...

https://connect.mayoclinic.org/comment/689085/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 13, 2022

Welcome to Mayo Connect, @glenkinman68 I am glad that you have joined our NETs discussion group....

https://connect.mayoclinic.org/comment/134547/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 21, 2019

Hi I was diagnosed a year ago with NET. It showed up with multiple lesions in...

https://connect.mayoclinic.org/comment/854586/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2023

In partial response to one of your latter questions. I am on Octreotide or Sandostatin as...

https://connect.mayoclinic.org/comment/896094/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15, 2023

Hi, @matt2024 ! Thank you for reaching out! I am "almost"vegetarian- very little meat and ear...

https://connect.mayoclinic.org/comment/1084252/

Discussion: Grade 1 Non-functioning (NF) NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 10 10:36am

Thank you for reaching out. I am a patient of Dr. Jason Starr at Mayo in...

https://connect.mayoclinic.org/comment/831954/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

Hello @wdd18054 I appreciate your post. I am Teresa and a volunteer mentor with Connect. I...

https://connect.mayoclinic.org/comment/186230/

Discussion: Multiple abnormal hormone levels - Could it be autoimmune related?

Support Group: Autoimmune Diseases

Posted: Feb 23, 2018

Mollie59, I have a friend who had open-heart surgery last year and it was amazing to...

https://connect.mayoclinic.org/comment/162798/

Discussion: Diagnosed with aggressive NET. Happy to see this group!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 29, 2017

The same week I met with the Dr at Dana Farber the first of September 2022...

https://connect.mayoclinic.org/comment/885611/

Discussion: Feeling discouraged and too many specialists

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 26, 2023

They map your liver about 30 days before the treatment I have tumors on both sides...

https://connect.mayoclinic.org/comment/1039825/

Discussion: Anyone have experience with "functioning" Pancreatic NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25 8:03am

Right now I’m being seen at Johns Hopkins. Because of a developing bowel obstruction the procedures...

https://connect.mayoclinic.org/comment/834012/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2023

Hello @marifersitacastro, I am glad that you are seeking out help for your dad as he...

https://connect.mayoclinic.org/comment/612492/

Discussion: July's Neuroendocrine Support Group

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 29, 2021

@tomewilson Hi Tom: I have not heard that this test is no longer use. I still...

https://connect.mayoclinic.org/comment/135493/

Discussion: The role of Tumor Marker Labs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 8, 2017

I would be curious to know what research you did that pointed you to Mayo? I...

https://connect.mayoclinic.org/comment/85560/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 8, 2017

Hi Colleen, My cancer is neuroendocrine small cell carcinoma originating in the gut and metastases to...

https://connect.mayoclinic.org/comment/1071318/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 20 12:19am

Neuroendocrine Tumors (NETs) Support Group