Neuroendocrine Tumors (NETs) Support Group

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Comments (935)

Mark, I was diagnosed with NETs (grade 2/3, inoperable, incurable) in Jan 2020 at Mayo Rochester....

https://connect.mayoclinic.org/comment/807712/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7, 2023

Hello @jacqquie, As you probably know, Squamous Cell Carcinoma is a type of skin cancer. Here...

https://connect.mayoclinic.org/comment/798257/

Discussion: Confused about diagnosis: Carcinoid tumor in rectal area

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 18, 2023

Welcome, @4237220. I agree with @maya8238 that it sounds like the cancer has been caught early...

https://connect.mayoclinic.org/comment/797237/

Discussion: Confused about diagnosis: Carcinoid tumor in rectal area

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 15, 2023

CONFESSION With the Ice/snow weekend. I WAS BAD I had too much processed junk food. I...

https://connect.mayoclinic.org/comment/1493126/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Jan 29 7:11am

@jessie1990 Jess, they need to know as much as possible before they operate. There may be...

https://connect.mayoclinic.org/comment/1455146/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 7, 2025

@gamaryanne good luck with surgery? Is it really needed? I was told about 1 year ago...

https://connect.mayoclinic.org/comment/1449382/

Discussion: What is your Recovery Advice for a Distal Pancreatectomy?

Support Group: Pancreatic Cancer

Posted: Nov 29, 2025

@mnewland99 I meant to write that age will play a factor, probably, in Howe well you...

https://connect.mayoclinic.org/comment/1448767/

Discussion: What is your Recovery Advice for a Distal Pancreatectomy?

Support Group: Pancreatic Cancer

Posted: Nov 28, 2025

I had a ct scan in 2018 after a motorcycle accident At that time they found...

https://connect.mayoclinic.org/comment/1392492/

Discussion: Has anyone had NET show up on CT scan, I had CT scan in 23

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 12, 2025

One thing you mentioned stood out for me. I had a carcinoid tumor removed because it...

https://connect.mayoclinic.org/comment/1382735/

Discussion: Stage 4 Carcinoid tumor: What treatments have you had?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 30, 2025

I have carcinoid tumors in my lungs. One began to grow, so my GP referred me...

https://connect.mayoclinic.org/comment/1382720/

Discussion: Lymph nodes removed during surgery removing tumors in the liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 30, 2025

Everyone laughs when I tell how mine was found. We had just ourchased a RV and...

https://connect.mayoclinic.org/comment/1289964/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 25, 2025

This is my opinion with the facts for myself. I started octreotide twelve and a half...

https://connect.mayoclinic.org/comment/1162233/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 24, 2024

Good to know. Just frustrating that no one ever suggested the SOB on exertion was related...

https://connect.mayoclinic.org/comment/1108851/

Discussion: DIPNECH (diffuse idiopathic pulmonary neuroendocrine cell hyperplasia)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2024

Since my diagnosis in 2002 at Mayo Clinic, I have had surgery to remove appendix, gallbladder,...

https://connect.mayoclinic.org/comment/137542/

Discussion: My Husband was newly diagnosed with Carcinoid Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2017

@dzertas, I did a little research and found this website that you might find helpful. It...

https://connect.mayoclinic.org/comment/134264/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 17, 2017

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