Neuroendocrine Tumors (NETs): Discussions | Page 47

Update- surgery on Feb.1st went well. My tumor was humongous - 1.8 kg! Succsessfully removed with...

https://connect.mayoclinic.org/comment/813585/

Discussion: Scared - Suspected NET on tail of the pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 18, 2023

I am also like you. I am new to this, but my diagnosis is worse in...

https://connect.mayoclinic.org/comment/776777/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 23, 2022

3 weeks ago I had a MRI and it found a tumour on the tail of...

https://connect.mayoclinic.org/comment/692355/

Discussion: Any NET patients from NYC

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 23, 2022

Hi Ken, I had a 5 cm PNET removed in March 2023. So, a year and...

https://connect.mayoclinic.org/comment/1083388/

Discussion: Grade 1 Non-functioning (NF) NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 9, 2024

I honestly have no idea but you should reach out to Mayo and see if they...

https://connect.mayoclinic.org/comment/1392724/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 13 8:27am

@astaingegerdm thank you. My CBC count is starting to show stress on my liver and pancreas...

https://connect.mayoclinic.org/comment/680634/

Discussion: Possible Mircoandenoma muscle wasting

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2022

Re: "come say hi". Hi, I am new here. I had an appendiceal NET removed in...

https://connect.mayoclinic.org/comment/800545/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 23, 2023

Hi Stevestenberg31 Your detail was very helpful and I am at a crossroads right now. I...

https://connect.mayoclinic.org/comment/919701/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 27, 2023

My two liver lesions have been on my liver for years. I have one on my...

https://connect.mayoclinic.org/comment/1111587/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25, 2024

Hi Joy (good positive name) I believe your primary source is in your sm. intestine (same...

https://connect.mayoclinic.org/comment/953010/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 24, 2023

Hi Lenora, I am the leader of The Wisconsin Neuroendocrine Cancer Connection, a group of 163...

https://connect.mayoclinic.org/comment/668825/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 7, 2022

My husband cancer was discovered at grade 3 well differentiated stage 4. He was also given...

https://connect.mayoclinic.org/comment/1100693/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 7, 2024

I've had 2 of my scheduled 4 TACE treatments and the first one really kicked my...

https://connect.mayoclinic.org/comment/866844/

Discussion: TACE Procedure: What is it like?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26, 2023

I was on everolimus, but drs felt it was not aggressive enough. Have been put on...

https://connect.mayoclinic.org/comment/838525/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6, 2023

Outlaw, my wife has almost the same area of pancreas with NET’s mass diagnosed last April....

https://connect.mayoclinic.org/comment/783580/

Discussion: Anyone out there have PNET experiences and outcomes to share?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 11, 2022

My husband was diagnosed with GTSBnet grade1-grade2 well-differented tumor 3 years ago. First you have to...

https://connect.mayoclinic.org/comment/1204614/

Discussion: Can anyone share information about NET in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 5 1:05pm

My primary NET was in the small intestine lining—did not show up in any scans. I...

https://connect.mayoclinic.org/comment/918263/

Discussion: Thank you for your words of encouragement on this journey! Now ???

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 24, 2023

My wife was diagnosed with stage 4 NET in April 2022, now after chemo, surgery, PRRT...

https://connect.mayoclinic.org/comment/1208188/

Discussion: Hello. I am new here. My husband was recently diagnosed with NETs.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10 8:50am

Thank you! My liver transplant was due to an autoimmune disease called PSC. This is my...

https://connect.mayoclinic.org/comment/1328778/

Discussion: Liver transplant and Neuroendocrine Carcinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16 10:32pm

I appreciate learning more about your story. You mentioned that your NET did not show up...

https://connect.mayoclinic.org/comment/1203359/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 3 7:06pm

Neuroendocrine Tumors (NETs) Support Group