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Public Support Group 1,009 total results
Comments (931)
I was suffering before my surgery with 3 small bowel constrictions due to Nets. I had...
https://connect.mayoclinic.org/comment/1216360/
Hi @ce1b I take Octreotide (similar to lanreotide) injections every 4 weeks for my lung NETs....
https://connect.mayoclinic.org/comment/896824/
I have had Scans read wrong I think private places don’t really know what they are...
https://connect.mayoclinic.org/comment/1184710/
I got a second opinion from MD Anderson's Neuroendocrine research doctors who also recommended Everolimus. My...
https://connect.mayoclinic.org/comment/1118230/
@kc43 how interesting that the initials in your mayo name of @kc43, is the exact initials...
https://connect.mayoclinic.org/comment/1110663/
Hi, Mark, I was diagnosed in 2007 with a carcinoid tumor that had wrapped around several...
https://connect.mayoclinic.org/comment/809267/
Hi Mark: I have commented before about my experience with PRRT, so will try not to...
https://connect.mayoclinic.org/comment/807548/
I was diagnosed almost 2 years ago with NET primary pancreas that metastasized to liver(over 100)...
https://connect.mayoclinic.org/comment/859321/
I had a full whipped done on May 12, 2017, I was put on creon 1200,...
https://connect.mayoclinic.org/comment/1015438/
@nana120 I wasn't told of any dietary restrictions when I started my octreotide injections, but maybe...
https://connect.mayoclinic.org/comment/937831/
In my opinion, you have the right attitude! Someone somewhere has it worse than we do....
https://connect.mayoclinic.org/comment/1206709/
@margaret12 I had fatigue and stomach issues (cramping and diarrhea) off and on beginning in August....
https://connect.mayoclinic.org/comment/812472/
Hi all! This is my first post so I probably won't be brief, but I have...
https://connect.mayoclinic.org/comment/1103421/
Hi Colleen, My cancer is neuroendocrine small cell carcinoma originating in the gut and metastases to...
https://connect.mayoclinic.org/comment/1071318/
@mgb20, I totally agree with @phyllisden ! It was probably 15 years before I was finally...
https://connect.mayoclinic.org/comment/831438/
@fraaseo: PRRT was a life extender for me. I only know how I was cared for...
https://connect.mayoclinic.org/comment/1339216/
@prariezebra: I’ve been in a similar situation and know your apprehension & fear well. 4 yrs...
https://connect.mayoclinic.org/comment/1352926/
My husband’s journey started In 2015 with stomach pains nothing diagnosed. Then in 2019 he was...
https://connect.mayoclinic.org/comment/1121892/
@panorman3 My husband's tumor was found in 1995 between the illeum and bowell. 7 of 11...
https://connect.mayoclinic.org/comment/1542507/
I was diagnosed with NET's in my Liver back in December 2022, started Lanreodide for a...
https://connect.mayoclinic.org/comment/1539459/
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