Neuroendocrine Tumors (NETs): Discussions | Page 43

In reply to k8lyn23, Hi I had mentioned the LACNET which is a very good Los...

https://connect.mayoclinic.org/comment/815722/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 22, 2023

I mand hopes et with an oncologist yesterday. My report: Small tumors in pelvic/abdominal region and...

https://connect.mayoclinic.org/comment/812958/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 17, 2023

I have carcinoid cancer stage 4 diagnosed 2 years ago with tumors spread to liver and...

https://connect.mayoclinic.org/comment/110437/

Discussion: Carcinoid Syndrome & Autoimmune Diseases.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 13, 2016

I found out 3 years ago that I have net cancer. Originated in small intestines and...

https://connect.mayoclinic.org/comment/848467/

Discussion: Differentiating Carcinoid syndrome from MCAS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2023

Hello! I just finished my 6th round of Lutetium LU-177 dotatate as part of the Compose...

https://connect.mayoclinic.org/comment/943115/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 6, 2023

@hollywood817 I appreciate all of your updates as you go through various treatments. Regarding the cough,...

https://connect.mayoclinic.org/comment/866925/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26, 2023

I did have a biopsy in Dec 2022. It was very painful since the IR said...

https://connect.mayoclinic.org/comment/901227/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 24, 2023

I, too, have metastatic innumerable liver lesions, as well as in my pelvis, lymph nodes, and...

https://connect.mayoclinic.org/comment/811172/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2023

Hi Ipate. Sorry to here of your multiple problems. I did not have any problems and...

https://connect.mayoclinic.org/comment/317669/

Discussion: Could I have NET?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 28, 2020

I was diagnosed in January 2020, grade 3 NETs with tumors in liver, lungs, pancreas, bones,...

https://connect.mayoclinic.org/comment/828078/

Discussion: High grade 2 and 3 neuroendocrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18, 2023

I think histotripsy is pretty exciting. Watch the videos on it. Yes, it was just approved...

https://connect.mayoclinic.org/comment/949922/

Discussion: Anyone heard about Histotripsy for liver NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 18, 2023

Hello, My name is Lenora and this is my first time commenting on the NETs website....

https://connect.mayoclinic.org/comment/668493/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2022

I wish I had an answer for you, but I doubt that even your doctor can...

https://connect.mayoclinic.org/comment/867084/

Discussion: Life expectancy with NETs and lifetyle as it progresses

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26, 2023

Hi vtn, I did the watch and wait for a small PNET on the head of...

https://connect.mayoclinic.org/comment/859339/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13, 2023

Hi Kim I posted about Histrotripsy a while ago, but more info comes out every day....

https://connect.mayoclinic.org/comment/1146088/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 23 10:54am

I'm also on Lanreotide...have had two injections so far. I have 3 TACE treatments with the...

https://connect.mayoclinic.org/comment/830111/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22, 2023

I am new to the group. Thanks for listening. Some quick background. I was diagnosed with...

https://connect.mayoclinic.org/comment/876491/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 11, 2023

Welcome I too am a new to NETS, just being diagnosed in late May. My Carcinoid...

https://connect.mayoclinic.org/comment/162796/

Discussion: Diagnosed with aggressive NET. Happy to see this group!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 28, 2017

I have just returned from my week at Mayo so I wanted to post a quick...

https://connect.mayoclinic.org/comment/593410/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 10, 2021

Hi Teresa, Thanks for following up. I have surgery scheduled for October 21st to have the...

https://connect.mayoclinic.org/comment/636553/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18, 2021

Neuroendocrine Tumors (NETs) Support Group