Neuroendocrine Tumors (NETs) Support Group

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Oops maybe I’ve got that wrong. He started chemo in 2018 then had to go to...

https://connect.mayoclinic.org/comment/981820/

Discussion: Stage four high-grade neuroendocrine carcinoma

Support Group: Lung Cancer

Posted: Dec 16, 2023

Yah, I started Somatulin Depot Feb 15, 2023. We will monitor the liver NET via MRI...

https://connect.mayoclinic.org/comment/952826/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2023

I get tested for Chromogranin every 4 weeks. My last result was around 1000. It had...

https://connect.mayoclinic.org/comment/793083/

Discussion: Neuroendocrine tumor: What tests are used for diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2023

I too have small cell cancer Mets 4 .to lungs and liver. 2017 Sept. Started out...

https://connect.mayoclinic.org/comment/232890/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Mar 21, 2019

I had haemocolectomy of the right colon 2 months ago. I was diagnosed with NET grade...

https://connect.mayoclinic.org/comment/1179228/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 24, 2024

Definitely discuss with your doctor's, all I can offer in my wife's case, is her weight...

https://connect.mayoclinic.org/comment/1047722/

Discussion: Spreading NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 9, 2024

Hello, sophiarose! I have pancreatic NET with liver metastases. My oncologist suggested Ga68 dotatate PET scan...

https://connect.mayoclinic.org/comment/1024494/

Discussion: 68Ga DOTATATE Positron Emission Tomography (PET) at Mayo Clinic

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 28, 2024

@Kathleenandbob: Thank you for giving me realistic hope. I’m only into 1yr of 28day shots, but...

https://connect.mayoclinic.org/comment/970018/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 24, 2023

Hi, I am Maria from Argentina. My best friend was diagnosed with neuroendocrine small cell cancer,...

https://connect.mayoclinic.org/comment/765410/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 25, 2022

I'm am 56yrs old with liver NETs metastatic as well. Ki-67 is 4, well differentiated as...

https://connect.mayoclinic.org/comment/1167298/

Discussion: Dotatate lights only in liver, but report says metastatic to liver?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 3, 2024

Hi, I am assuming that pNET is for Pancreatic cancer? I was told that as we...

https://connect.mayoclinic.org/comment/916665/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 21, 2023

@colleenyoung I wanted to give an update on my CT scan after 2 PRRT infusions. Three...

https://connect.mayoclinic.org/comment/819167/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1, 2023

Hi katballoo! I am so glad you will be going to Mayo in Rochester. You couldn’t...

https://connect.mayoclinic.org/comment/814408/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 20, 2023

Yes i had small bowel surgery 10 days back.. currently m recovering for chemo..i lost 12...

https://connect.mayoclinic.org/comment/786385/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 18, 2022

@firepowr, sorry to hear that the CT scan revealing more growth in the liver. Glad that...

https://connect.mayoclinic.org/comment/775388/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 20, 2022

No. No one realized what was going on until I went home 12 days post surgery....

https://connect.mayoclinic.org/comment/674116/

Discussion: Have you ever had hiccups with or after chemotherapy?

Support Group: Cancer: Managing Symptoms

Posted: Jan 23, 2022

I was diagnosed with stage 4 pancreatic NETs to liver in 8/22. I will start my...

https://connect.mayoclinic.org/comment/903632/

Discussion: Should I want more treatment after pancreatic nets with lymph nodes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 28, 2023

I met with my oncologist. The big tumors on my pancreas are about half the size...

https://connect.mayoclinic.org/comment/834133/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2023

This is all very new to me. I was just diagnosed in December 2022. I have...

https://connect.mayoclinic.org/comment/804031/

Discussion: Neck and face red flushing

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 30, 2023

My husband has multiple NETs in the liver and the primary site is in the small...

https://connect.mayoclinic.org/comment/1208254/

Discussion: MRI or CatScan as follow up imaging for metastatic liver tumor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10 10:04am

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