Neuroendocrine Tumors (NETs): Discussions | Page 40

My experience: After discovery in Mar./2023 of a Grade 2, Small intestine NETs that metastasized to...

https://connect.mayoclinic.org/comment/1061064/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2 6:49pm

Nice to hear from a fellow Badger. Certianly hope all goes well for your wife's recovery...

https://connect.mayoclinic.org/comment/827544/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2023

Hopeful. I was diagnosed with Islet Cell Cancer, a neuroendricine adenoma carcinoma back in July of...

https://connect.mayoclinic.org/comment/90122/

Discussion: I have recently been diagnosed with my third neuroendocrine tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2016

@retiredinkazoo - I have similar case - huge pNet on the tail ( 20x16 cm) plus...

https://connect.mayoclinic.org/comment/1075652/

Discussion: newly diagnosed pNET on tail of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 27 10:35am

@hollywood817- Wow... you are going through a lot. Have you by chance had genetic testing done...

https://connect.mayoclinic.org/comment/796472/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 14, 2023

@firepowr if you don’t mind me asking, what have they said about yours that is considered...

https://connect.mayoclinic.org/comment/813521/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 18, 2023

I started with two rounds of capecitabine/temozolamide, which did not work at all. I switched to...

https://connect.mayoclinic.org/comment/767094/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 29, 2022

Just wanted to comment on this thread as I kind of had a similar experience. In...

https://connect.mayoclinic.org/comment/633582/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 7, 2021

I am on Creon. It was prescribed to me after surgery. I had a very large...

https://connect.mayoclinic.org/comment/952517/

Discussion: Is everyone with pNETs on creon?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2023

When my NET was diagnosed I was seeing an oncologist who immediately recommended chemo. At age...

https://connect.mayoclinic.org/comment/1030379/

Discussion: What questions should I ask oncologist tumor types and chemo treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 9 9:08am

I was diagnosed with stage 4 advanced NET s primary in the small bowels, and metastasized...

https://connect.mayoclinic.org/comment/1112552/

Discussion: GI Net stage 4 advanced: Is it incurable?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 27 7:56am

@helloitsme I had my pre chemo visit at Mayo Phoenix yesterday. Had some blood work done...

https://connect.mayoclinic.org/comment/851513/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29, 2023

I'm feeling happy, that's for sure. I had asked how can you tell the difference between...

https://connect.mayoclinic.org/comment/102019/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 30, 2016

Hello @amani79 I am sorry to hear of your daughter's diagnosis with NETs and mets to...

https://connect.mayoclinic.org/comment/163136/

Discussion: How to get a second opinion for an international patient??

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 10, 2017

Chromogranin is a fairly reliable biomarker used to monitor patients with neuroendocrine cancers. Mine was up...

https://connect.mayoclinic.org/comment/882094/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 20, 2023

Hi It's a shame that a blockage had to be the warning sign. I was never...

https://connect.mayoclinic.org/comment/920251/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 28, 2023

I have experienced this and feel something in my armpit lymph node area too. My oncologist...

https://connect.mayoclinic.org/comment/1073038/

Discussion: Lung Nets and pain in arm pit

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 23 12:06am

William, My NEC Carotid Body Paraganglioma was active. Till NEC diagnosis I have been miss-diagnosed twice....

https://connect.mayoclinic.org/comment/971072/

Discussion: Anyone had nauseous, gas burping as symptoms for NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 27, 2023

@rockchick I'm sorry about your diagnosis of NET on the pancreas. As your aware, none of...

https://connect.mayoclinic.org/comment/810956/

Discussion: Scared - Suspected NET on tail of the pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2023

You have been dealing with it longer than my wife has and seem to have a...

https://connect.mayoclinic.org/comment/867263/

Discussion: Life expectancy with NETs and lifetyle as it progresses

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26, 2023

Neuroendocrine Tumors (NETs) Support Group