Neuroendocrine Tumors (NETs) Support Group

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Comments (240)

UPDATE: On January 28 I had surgery. 27cm of the small intestine was removed and 15cm...

https://connect.mayoclinic.org/comment/329142/

Discussion: Small bowel NET and colon cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 4, 2021

Hi! Thank you for sending the article, this is the one I had read and found...

https://connect.mayoclinic.org/comment/948561/

Discussion: Anyone heard about Histotripsy for liver NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 16, 2023

Hello All I too have Neuroendocrine carcinoma that started in my small intestine and metastatic to...

https://connect.mayoclinic.org/comment/797748/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16, 2023

@isaiah5417nt, when I had a blockage in my small intestine in 2018, they also found one...

https://connect.mayoclinic.org/comment/835728/

Discussion: Anyone have a stomach NET?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 1, 2023

I’m so glad you reached out to us with your swelling concerns. My treatment of Somatuline...

https://connect.mayoclinic.org/comment/883717/

Discussion: Anyone have swelling with liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2023

I’m having similar problems and am no sure whether it’s the lanreotide or the 15” removed...

https://connect.mayoclinic.org/comment/858717/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 12, 2023

Hi. I too am on a watch and wait recommendation and am very uncomfortable with that....

https://connect.mayoclinic.org/comment/848478/

Discussion: Has anyone chosen the Watch and Wait and regretted that choice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2023

I hope your issues resolve quickly and the plan goes well. This past year I've had...

https://connect.mayoclinic.org/comment/749896/

Discussion: Intestinal Blockage with NETs: Anyone else?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2022

My husband was diagnosed 2 years ago after finding a 2” tumor pressing on his spinal...

https://connect.mayoclinic.org/comment/885643/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 26, 2023

My NET was discovered incidentally to an abdominal CT—it was a walnut-size tumor in the mesentery...

https://connect.mayoclinic.org/comment/829313/

Discussion: Has the NET found in my axilla or arm pit likely to have spread?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20, 2023

Hi I’m Charlotte and I just became a member , I’m living with Net my first...

https://connect.mayoclinic.org/comment/747800/

Discussion: Learn About NETs and monthly meetings

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 10, 2022

thanks for the suggestions. I checked the info on Creon and I am on Allopurinol for...

https://connect.mayoclinic.org/comment/1118272/

Discussion: Everolimus for multiple Neuroendocrine tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 5, 2024

My tumors started in the small intestine and metastasized to the liver before I was diagnosed....

https://connect.mayoclinic.org/comment/1072655/

Discussion: Flushing with NETS lung cancer?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 22, 2024

Question… I am having surgery the first week of November to remove roughly 12 inches of...

https://connect.mayoclinic.org/comment/764338/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2022

my primary NET was small intestine with secondary tumor in mesentery. Liver mets were detected 3...

https://connect.mayoclinic.org/comment/828228/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18, 2023

Hi, I have a carcenoid tumor, inoperable, stage 4 cancer, in my Mesentery, it is in...

https://connect.mayoclinic.org/comment/748346/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 11, 2022

My PET scan was interpreted for my breast cancer recurrence. Everything was explained to me as...

https://connect.mayoclinic.org/comment/700289/

Discussion: PET scan clarification: Are the indicators cancer specific?

Support Group: Breast Cancer

Posted: Apr 18, 2022

Just went to the first oncologist appointment. After my doctor discussed with the hospital tumor board...

https://connect.mayoclinic.org/comment/812004/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2023

Just scared, nervous, you know all the emotions. I wonder how long I will in the...

https://connect.mayoclinic.org/comment/750910/

Discussion: Just got the news… stage 2 Carcinoid tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 17, 2022

Mikhailsapenko, my experience was similar to yours in that I had been in/out of the ER...

https://connect.mayoclinic.org/comment/1194781/

Discussion: Still have symptoms after surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 21, 2024

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