Neuroendocrine Tumors (NETs): Discussions | Page 4

I joined the NET support group because my father had an intestinal carcinoid tumor; my half...

https://connect.mayoclinic.org/comment/275684/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 22, 2019

Hello @lilbitnwv and welcome to the Merkel Cell support group on Mayo Connect. I'm glad that...

https://connect.mayoclinic.org/comment/940517/

Discussion: Merkel cell-radiation effective on chest-new 2 cm spot on liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 2, 2023

My tumor on my nose, tripled in size in about three weeks and changed color. When...

https://connect.mayoclinic.org/comment/1110108/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 22 5:15pm

Yesterday I finished my 16th infusion of OPDIVO. I have had no adverse side effects and...

https://connect.mayoclinic.org/comment/1072682/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 22 9:44am

I’m a newbie, female,71 years young, and I just talked to my ENT doctor about my...

https://connect.mayoclinic.org/comment/1108803/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20 10:50am

Thank you, John. I will do more research. Actually it is my sister who had the...

https://connect.mayoclinic.org/comment/163660/

Discussion: followup testing after lung carcinoid

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 15, 2017

Welcome @kate777, I can imagine that your terrified that Merkel cell may have spread. Spots on...

https://connect.mayoclinic.org/comment/777248/

Discussion: Merkel cell-radiation effective on chest-new 2 cm spot on liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 25, 2022

Hello Lynn, I'm hoping this finds you well and having received good news regarding your PET...

https://connect.mayoclinic.org/comment/1047728/

Discussion: Merkel cancer update

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 9 7:43am

Hi Rose830, I had to look up Merkel Cell Cancinoma as I'm not familiar with it....

https://connect.mayoclinic.org/comment/844303/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 17, 2023

I am also Canadian. Nd we just call them PET SCANS up here we always get...

https://connect.mayoclinic.org/comment/1082732/

Discussion: What NETS show on Gallium scan?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 7 7:16pm

Hi @lynnemerk1 . You couldn’t just get normal skin cancer like the rest of us? You...

https://connect.mayoclinic.org/comment/1107835/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 18 3:47pm

I am 71 and newly diagnosed with Merkel Cell Carcinoma. I had a fairly large tumor...

https://connect.mayoclinic.org/comment/998755/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 17 6:24am

Hello Lynn99, I am Roger McIntire, also a Merkel Cell Carcinoma fighter. I'm 81 and in...

https://connect.mayoclinic.org/comment/998884/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 17 9:24am

Welcome @mkhighpoint. I added your question to the Transplants group (https://connect.mayoclinic.org/group/transplants/) as well as the NETs...

https://connect.mayoclinic.org/comment/765940/

Discussion: Merkel Cell Carcinoma: Immunotherapy while on antirejection meds

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 26, 2022

Hey Lynn, sounds like you are handling the treatments very well and you are correct when...

https://connect.mayoclinic.org/comment/1013030/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10 9:57am

Thanks for your reply, Teresa @hopeful33250. I contacted NIH a couple years ago about their research...

https://connect.mayoclinic.org/comment/275694/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 8, 2019

Hello Lynn99, it is great to hear how you are doing! Most of my radiation side...

https://connect.mayoclinic.org/comment/1109181/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 21 8:22am

I was dx the end of Dec 1023 and had surg in Jan 2024 and 30...

https://connect.mayoclinic.org/comment/1108984/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20 3:56pm

@collenyoung, Thank you for your empathy and helpful advice. My insurance will not let me go...

https://connect.mayoclinic.org/comment/791307/

Discussion: Merkel cell-radiation effective on chest-new 2 cm spot on liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 2, 2023

Hello Lynn99, here is hoping you are continuing to improve with the Merkel situation and its...

https://connect.mayoclinic.org/comment/1063899/

Discussion: Merkel cancer update

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 7 5:24pm

Neuroendocrine Tumors (NETs) Support Group