Neuroendocrine Tumors (NETs) Support Group

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Comments (113)

Hello @mktz49 I am happy to make contact with you as we share similar connections with...

https://connect.mayoclinic.org/comment/1063896/

Discussion: Merkel cancer update

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 7, 2024

I was referred to an oncology office which included the surgeon and medical oncologist. I still...

https://connect.mayoclinic.org/comment/1290792/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Apr 26, 2025

@rogermcintire Hello, my name is Marissa i was diagnose with MCC on Jan 2024 they were...

https://connect.mayoclinic.org/comment/1405411/

Discussion: Merkel cancer update

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 30, 2025

Hi. I’m a 72 year old male. I was diagnosed with Merkel cell on my right...

https://connect.mayoclinic.org/comment/962915/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Nov 11, 2023

There was a small purple pimple like place just under my left eye on the cheek...

https://connect.mayoclinic.org/comment/995997/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Jan 12, 2024

Can you contract Merkel cell from kissing if your partner has MCC. I have a weak...

https://connect.mayoclinic.org/comment/780459/

Discussion: Merkel cell-radiation effective on chest-new 2 cm spot on liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 3, 2022

I was diagnosed with Merkel Cell Carcinoma August of 2020 All I heard was very rare...

https://connect.mayoclinic.org/comment/1007948/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Feb 1, 2024

Kate, I'm throwing confetti your way. No sign of cancer or no evidence of disease (NED)...

https://connect.mayoclinic.org/comment/847392/

Discussion: Merkel cell-radiation effective on chest-new 2 cm spot on liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2023

I’m a newbie, female,71 years young, and I just talked to my ENT doctor about my...

https://connect.mayoclinic.org/comment/1108803/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Jul 20, 2024

I was very recently diagnosed with Merkel Cell Carcinoma. All of you sound very knowledgeable and...

https://connect.mayoclinic.org/comment/844295/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 17, 2023

I look forward to hearing from you, @maryluph1953, as you continue this journey with Merkel Cell....

https://connect.mayoclinic.org/comment/1155863/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Oct 12, 2024

I joined the NET support group because my father had an intestinal carcinoid tumor; my half...

https://connect.mayoclinic.org/comment/275684/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 22, 2019

My tumor on my nose, tripled in size in about three weeks and changed color. When...

https://connect.mayoclinic.org/comment/1110108/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Jul 22, 2024

Hello @lilbitnwv and welcome to the Merkel Cell support group on Mayo Connect. I'm glad that...

https://connect.mayoclinic.org/comment/940517/

Discussion: Merkel cell-radiation effective on chest-new 2 cm spot on liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 2, 2023

Hello Cindy, just checking in to see how you are doing. I wanted to share some...

https://connect.mayoclinic.org/comment/1054176/

Discussion: Merkel cancer update

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20, 2024

Hello Lynn, I'm hoping this finds you well and having received good news regarding your PET...

https://connect.mayoclinic.org/comment/1047728/

Discussion: Merkel cancer update

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 9, 2024

Welcome @kate777, I can imagine that your terrified that Merkel cell may have spread. Spots on...

https://connect.mayoclinic.org/comment/777248/

Discussion: Merkel cell-radiation effective on chest-new 2 cm spot on liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 25, 2022

Yesterday I finished my 16th infusion of OPDIVO. I have had no adverse side effects and...

https://connect.mayoclinic.org/comment/1072682/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: May 22, 2024

Thank you for asking:) We got incredible news!! My husband’s PET scan was negative for any...

https://connect.mayoclinic.org/comment/1264929/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Mar 23, 2025

I am 71 and newly diagnosed with Merkel Cell Carcinoma. I had a fairly large tumor...

https://connect.mayoclinic.org/comment/998755/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Jan 17, 2024

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