Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

2,727 total results

Comments (2,500)

Correct there is no hope to beat it. One of the first things I asked about...

https://connect.mayoclinic.org/comment/292372/

Discussion: Multiple Endocrine Neoplasia 1 (MEN1): What treatments have you had?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2020

Hi Teresa, Thanks for your concern and prayers. Yes, it will be a liver resection. The...

https://connect.mayoclinic.org/comment/637391/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 20, 2021

Lanreotide every 28 days, starting with 4 month scans and moving to 6 months scans, if...

https://connect.mayoclinic.org/comment/1551290/

Discussion: Severe itching from liver metastasis (NETs)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 15 2:16pm

Yes; fatty liver showed up on scans/labs following cytoreductive/debulking surgery for GI mets & now on...

https://connect.mayoclinic.org/comment/1377451/

Discussion: Neuroendocrine Tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 23, 2025

liver and stomach

https://connect.mayoclinic.org/comment/1251267/

Discussion: Anyone dealing with Carcinoid NETs with Diabetes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 5, 2025

@tomrennie Sorry for late reply. My PNET was 1.8, well differentiated and I was going to...

https://connect.mayoclinic.org/comment/1585529/

Discussion: Anyone have pNET in pancreatic tail & had distal pancreactomy?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28 3:59pm

My pancreatic cancer has metastsized to the liver and I have started chemo Rx. If the...

https://connect.mayoclinic.org/comment/1307883/

Discussion: Pancreatic Cancer Q&A with Dr. Stauffer, Mayo Surgeon: Archive

Support Group: Pancreatic Cancer

Posted: May 19, 2025

@hopeful33250 I see you were directing your question to @dadcue, but I figured I'd add my...

https://connect.mayoclinic.org/comment/1615848/

Discussion: Complicated NET Surgery Needed

Support Group: Neuroendocrine Tumors (NETs)

Posted: 2 days ago

@donnalb4 I will assume that you are asking me that question. Just an FYI, if you...

https://connect.mayoclinic.org/comment/1615903/

Discussion: NET Stage 2 in Stomach

Support Group: Neuroendocrine Tumors (NETs)

Posted: 2 days ago

Hi Peter Are the liver Mets the full extent of your disease now? If so, has...

https://connect.mayoclinic.org/comment/1000541/

Discussion: Statistics on progression free survival while on SSA / Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 20, 2024

For me the shots have stopped my diarrhea and blocked growth of my liver mastics with...

https://connect.mayoclinic.org/comment/1595539/

Discussion: What side effects did you experience with Octreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 11 6:30am

Hi I have been getting lanreotide 120mg every 3 weeks. I had prrtcabout 2 years ago...

https://connect.mayoclinic.org/comment/1569665/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 8 9:24am

Hello Everyone I also have NETs that has metastasized on the inside of my Liver. I...

https://connect.mayoclinic.org/comment/739390/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 19, 2022

@mn86az, as @lindabees posted, there are several treatment possibilities for liver cancer and liver metastasis. Did...

https://connect.mayoclinic.org/comment/1299888/

Discussion: Pancreatic Cancer: Anyone have liver metastasis after Whipple?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 8, 2025

Thank you for responding As per my liver surgeon I have to get an MRI to...

https://connect.mayoclinic.org/comment/829075/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20, 2023

my primary NET was small intestine with secondary tumor in mesentery. Liver mets were detected 3...

https://connect.mayoclinic.org/comment/828228/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18, 2023

@tomrennie, I have stage 4 neoindcrine cancer. The original tumor was blocking my small intestine and...

https://connect.mayoclinic.org/comment/1606353/

Discussion: PRRT Treatment: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 25 6:50pm

I do have pancreatic nets that metasticized to the liver. When I first got lanreotide (hormone)...

https://connect.mayoclinic.org/comment/1617704/

Discussion: Itch with liver pNets

Support Group: Neuroendocrine Tumors (NETs)

Posted: 2 hours ago

@kathyfujii I'm scheduled for liver ablation next month. Then distal following week. I'm not sure if...

https://connect.mayoclinic.org/comment/1590215/

Discussion: Anyone have pNET in pancreatic tail & had distal pancreactomy?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 4 2:18am

@kgrear I live in Cairns australia. No net specialist here. I have a fantastic medical team....

https://connect.mayoclinic.org/comment/1435374/

Discussion: S4, G2 NETS in mesentery. Declined Exploratory Surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10, 2025

1
2
3
4
5
6
…
125

Follow

10520

28 minutes ago

Pancreatic Cancer

Follow

3733

31 minutes ago

Digestive Health

Follow

19102

45 minutes ago

Follow

1975

55 minutes ago

Visiting Mayo Clinic

Follow

7083

1 hour ago